A community-centric model for conference co-creation: the world conference on CDG for patients, families and professionals
This paper describes a reliable, highly adaptable conference co-creation model that fosters community-building, disseminates understandable information, and serves as a borderless platform to incentivize multiple stakeholder collaborations towards CDG research and drug development. We argue this is a reproducible model that can be endorsed and more widely adopted by other disease communities and events.
Authors
- Pedro Granjo
- Rita Francisco (ORCID: https://orcid.org/0000-0002-4398-3401)
- Vanessa dos Reis Ferreira (ORCID: https://orcid.org/0000-0002-0696-2169)
- Cláudia de Freitas (ORCID: https://orcid.org/0000-0002-1828-8642)
- Carlota Pascoal (ORCID: https://orcid.org/0000-0001-5049-0579)
- Paula A. Videira (ORCID: https://orcid.org/0000-0001-5987-2485)
Institutions
- Iscte – Instituto Universitário de Lisboa (PT)
- Alliant International University (US)
- Uninova (PT)
- i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto (PT)
- Universidade Nova de Lisboa (PT)
Publication Details
- Journal
- Research Involvement and Engagement
- Published
- 2024-10-23
- DOI
- https://doi.org/10.1186/s40900-024-00641-8
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission
- Horizon 2020 Framework Programme
- Fundação para a Ciência e a Tecnologia