“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia

Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (<i>n</i> = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.

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Publication Details

Journal
Journal of Family Nursing
Published
2024-10-20
DOI
https://doi.org/10.1177/10748407241288606
Citations
6
Primary Topic
Resilience and Mental Health
Type
article
Field-Weighted Citation Impact
3.83

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article

“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia

Bruno Giordani, Sheria G. Robinson‐Lane, Jada Jackson, Marie Jeanne Tuyisenge et al.
6 citations
Journal of Family Nursing
Resilience and Mental Health
3.83
article

“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia

Bruno Giordani, Sheria G. Robinson‐Lane, Jada Jackson, Marie Jeanne Tuyisenge, Florence U. Johnson, Priya Tripathi, Tasneem Qurashi
article en
6 citations

Abstract

Black family caregivers of persons with dementia experience high levels of stress that can negatively affect caregiver health outcomes and reduce caregiving capacity. However, Black caregivers tend to report low levels depressive symptoms or other negative health effects. This qualitative descriptive study aimed to identify factors that contribute to resilience among Black family caregivers. Using the rigorous and accelerated data reduction (RADaR) technique to complete thematic analysis, a team of five coders examined transcript data from three focus groups of Black current and former family caregivers (<i>n</i> = 17) of persons with dementia. We identified three primary factors that contributed to caregiver resilience including access to supportive environments, adaptability, and planning skills. Caregiver resistance to reporting depressive symptoms may be attributed to the strong Black woman schema. Findings from this study may be used to develop future culturally responsive interventions that support caregivers and promote family health.

Journal of Family NursingVol. 30(4)
University of Michigan (US)
National Institute on Aging
Openalex Percentile: Top 7%
Resilience and Mental Health
3.83
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“It Isn’t What I Had to Do, It’s What I Get to Do”: The Experiences of Black Family Caregivers Managing Dementia — Bruno Giordani, Sheria G. Robinson‐Lane, et al. · Journal of Family Nursing (2024) | TGRS Research Map | TGRS