Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

Given the rapid development of digital mental health technologies and a focus on connecting with youth, there is an urgent need to enhance the engagement of young people with lived expertise in research. Even so, youth with lived experience of accessing mental health services are particularly affected by power imbalances and may receive limited compensation in academic settings. Therefore, an emphasis on how research engagement not only improves the work but can benefit young people themselves is required. Here, 5 young people with lived expertise report on their experience of being employed as researchers at the University of Sydney's Brain and Mind Centre. As such, this team is uniquely placed to offer reflections from their work across multiple stages of research. This led to four key insights, including (1) creating accepting work cultures, (2) providing diverse opportunities for involvement, (3) giving young people agency and flexibility around sharing lived experiences, and (4) creating accommodating work environments for all researchers. We suggest that these insights can support more diverse ways of engaging young people and maximizing the value of participation for both researchers and young people themselves.

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Publication Details

Journal
Journal of Medical Internet Research
Published
2024-10-18
DOI
https://doi.org/10.2196/55441
Citations
4
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
3.40
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article

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

Yun Ju Christine Song, Frank Iorfino, Ian Bernard Hickie, Elizabeth Scott et al.
4 citations
Journal of Medical Internet Research
Mental Health and Patient Involvement
3.40
article

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research

Yun Ju Christine Song, Frank Iorfino, Ian Bernard Hickie, Elizabeth Scott, Sarah McKenna, Samuel J Hockey, Alexis Hutcheon, Zsofi de Haan, Carla Gorban, Josephine Brogden
article en
4 citations

Abstract

Given the rapid development of digital mental health technologies and a focus on connecting with youth, there is an urgent need to enhance the engagement of young people with lived expertise in research. Even so, youth with lived experience of accessing mental health services are particularly affected by power imbalances and may receive limited compensation in academic settings. Therefore, an emphasis on how research engagement not only improves the work but can benefit young people themselves is required. Here, 5 young people with lived expertise report on their experience of being employed as researchers at the University of Sydney's Brain and Mind Centre. As such, this team is uniquely placed to offer reflections from their work across multiple stages of research. This led to four key insights, including (1) creating accepting work cultures, (2) providing diverse opportunities for involvement, (3) giving young people agency and flexibility around sharing lived experiences, and (4) creating accommodating work environments for all researchers. We suggest that these insights can support more diverse ways of engaging young people and maximizing the value of participation for both researchers and young people themselves.

Journal of Medical Internet ResearchVol. 26
The University of Sydney (AU)
Openalex Percentile: Top 7%
Mental Health and Patient Involvement
3.40
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Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research — Yun Ju Christine Song, Frank Iorfino, et al. · Journal of Medical Internet Research (2024) | TGRS Research Map | TGRS