THE FIGHT INHERITED RETINAL BLINDNESS! PROJECT
Fight Inherited Retinal Blindness! is an organized, web-based system that uses observational study methods to collect uniform data from patients with inherited retinal disease to track natural history and (uniquely) treatment outcomes. It is free to users who have control over their data.
Authors
- Mark C. Gillies (ORCID: https://orcid.org/0000-0001-8580-0274)
- John Grigg (ORCID: https://orcid.org/0000-0002-6763-8119)
- Thomas L. Edwards (ORCID: https://orcid.org/0000-0003-0238-7416)
- Robyn V. Jamieson (ORCID: https://orcid.org/0000-0002-7285-0253)
- Andrea L. Vincent (ORCID: https://orcid.org/0000-0002-4185-3267)
- Matthew P. Simunovic (ORCID: https://orcid.org/0000-0003-0596-1356)
- M. Dominik Fischer
- Alex William Hewitt (ORCID: https://orcid.org/0000-0002-5123-5999)
- Heather G. Mack (ORCID: https://orcid.org/0000-0001-9756-1098)
- Fred K. Chen (ORCID: https://orcid.org/0000-0003-2809-9930)
- Lauren N. Ayton (ORCID: https://orcid.org/0000-0001-9907-084X)
- Michael Hogden
- Omar A. Mahroo (ORCID: https://orcid.org/0000-0003-1254-0832)
- Daniel Barthelmes (ORCID: https://orcid.org/0000-0002-5431-4991)
- Panagiotis I. Sergouniotis
- Mandeep Singh (ORCID: https://orcid.org/0000-0003-0590-6197)
- Bart Leroy
- Anthony T. Moore
Institutions
- University of Auckland (NZ)
- The University of Western Australia (AU)
- University of Zurich (CH)
- Ghent University Hospital (BE)
- Manchester Royal Eye Hospital (GB)
- Princess Alexandra Hospital (AU)
- Children's Hospital at Westmead (AU)
- Sydney Hospital (AU)
- Manchester University NHS Foundation Trust (GB)
- University Hospital of Zurich (CH)
- Centre for Eye Research Australia (AU)
- University of California San Francisco Medical Center (US)
- Moorfields Eye Hospital (GB)
- Johns Hopkins Hospital (US)
- University College London (GB)
Publication Details
- Journal
- Retina
- Published
- 2024-10-17
- DOI
- https://doi.org/10.1097/iae.0000000000004296
- Citations
- 2
- Primary Topic
- Genomics and Rare Diseases
- Type
- article
- Field-Weighted Citation Impact
- 1.10