Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population
Hidradenitis suppurativa (HS) is a chronic, skin-immunemediated inflammatory disease (sIMID), with a high impact on quality of life (QoL). Data on clinical management, comorbidities, psychosocial burden, and psychiatric disorders in pediatric patients with HS are scarce. The aim of our study was to compare clinical characteristics and patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) in adult and pediatric patients with HS. Data were collected on 601 patients with HS, 60 of whom (10.0%) were pediatric. The psychological and HRQoL impact was generally higher in adults than children, but it was also noteworthy in pediatric patients. Early diagnosis and interventions based on education for the patients and their families and psychological support are the key to optimal disease management and adherence. Our study underlines the need for screening for HS-associated psychiatric disorders and for using age-specific tools to evaluate HRQoL. A multidisciplinary approach involving several specialists is needed, as well as liaison with primary care specialists to improve care and management of comorbidities and psychological issues in patients with HS.
Authors
- Davide Ciccone
- Damiano Abeni (ORCID: https://orcid.org/0000-0002-0167-7617)
- Luca Fania (ORCID: https://orcid.org/0000-0003-4194-932X)
- Francesca Sampogna (ORCID: https://orcid.org/0000-0002-7624-3290)
- Simona Mastroeni (ORCID: https://orcid.org/0000-0002-8396-5347)
- Anna Dattolo (ORCID: https://orcid.org/0000-0002-0488-2341)
Institutions
- Istituto Superiore di Sanità (IT)
- National Centre for Disease Prevention and Control (IT)
- Istituto Dermopatico dell'Immacolata (IT)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
Publication Details
- Journal
- Dermatology Reports
- Published
- 2024-10-16
- DOI
- https://doi.org/10.4081/dr.2024.10086
- Primary Topic
- Hidradenitis Suppurativa and Treatments
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Ministero della Salute