Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population

Hidradenitis suppurativa (HS) is a chronic, skin-immunemediated inflammatory disease (sIMID), with a high impact on quality of life (QoL). Data on clinical management, comorbidities, psychosocial burden, and psychiatric disorders in pediatric patients with HS are scarce. The aim of our study was to compare clinical characteristics and patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) in adult and pediatric patients with HS. Data were collected on 601 patients with HS, 60 of whom (10.0%) were pediatric. The psychological and HRQoL impact was generally higher in adults than children, but it was also noteworthy in pediatric patients. Early diagnosis and interventions based on education for the patients and their families and psychological support are the key to optimal disease management and adherence. Our study underlines the need for screening for HS-associated psychiatric disorders and for using age-specific tools to evaluate HRQoL. A multidisciplinary approach involving several specialists is needed, as well as liaison with primary care specialists to improve care and management of comorbidities and psychological issues in patients with HS.

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Publication Details

Journal
Dermatology Reports
Published
2024-10-16
DOI
https://doi.org/10.4081/dr.2024.10086
Primary Topic
Hidradenitis Suppurativa and Treatments
Type
article
Field-Weighted Citation Impact
0.00

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article

Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population

Davide Ciccone, Damiano Abeni, Luca Fania, Francesca Sampogna et al.
Dermatology Reports
Hidradenitis Suppurativa and Treatments
article

Health-related quality of life and clinical characteristics of hidradenitis suppurativa in a pediatric population

Davide Ciccone, Damiano Abeni, Luca Fania, Francesca Sampogna, Simona Mastroeni, Anna Dattolo
article en

Abstract

Hidradenitis suppurativa (HS) is a chronic, skin-immunemediated inflammatory disease (sIMID), with a high impact on quality of life (QoL). Data on clinical management, comorbidities, psychosocial burden, and psychiatric disorders in pediatric patients with HS are scarce. The aim of our study was to compare clinical characteristics and patient-reported outcome measures (PROMs) for health-related quality of life (HRQoL) in adult and pediatric patients with HS. Data were collected on 601 patients with HS, 60 of whom (10.0%) were pediatric. The psychological and HRQoL impact was generally higher in adults than children, but it was also noteworthy in pediatric patients. Early diagnosis and interventions based on education for the patients and their families and psychological support are the key to optimal disease management and adherence. Our study underlines the need for screening for HS-associated psychiatric disorders and for using age-specific tools to evaluate HRQoL. A multidisciplinary approach involving several specialists is needed, as well as liaison with primary care specialists to improve care and management of comorbidities and psychological issues in patients with HS.

Dermatology ReportsVol. 17(2)
Istituto Superiore di Sanità (IT), National Centre for Disease Prevention and Control (IT), Istituto Dermopatico dell'Immacolata (IT), Istituti di Ricovero e Cura a Carattere Scientifico (IT)
Ministero della Salute
Openalex Percentile: Top 62%
Hidradenitis Suppurativa and Treatments
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