Patient-Reported Outcomes Among Adults With Congenital Heart Disease in the Congenital Heart Initiative Registry
In this cohort study of adults living with CHD, many patients reported mood disorders, but most reported good health-related quality of life. The CHI, the largest registry of adults with CHD, is poised to facilitate multicenter research with the goal of improving clinical outcomes for all adults with CHD.
Authors
- Thomas W. Carton (ORCID: https://orcid.org/0000-0003-0059-1990)
- Adam M. Lubert (ORCID: https://orcid.org/0000-0001-6401-9980)
- Mark J. Pletcher (ORCID: https://orcid.org/0000-0002-6966-1312)
- Mark Roeder
- Leigh Reardon (ORCID: https://orcid.org/0000-0002-1555-9099)
- Dan G. Halpern (ORCID: https://orcid.org/0000-0002-1656-798X)
- Noah D. Peyser (ORCID: https://orcid.org/0000-0003-4529-8325)
- Matthew Lewis (ORCID: https://orcid.org/0000-0002-8991-0638)
- Emily Ruckdeschel
- Arwa Saidi (ORCID: https://orcid.org/0009-0005-9032-3157)
- Richard A. Krasuski (ORCID: https://orcid.org/0000-0003-3150-5215)
- Satinder Sandhu (ORCID: https://orcid.org/0000-0001-7348-7284)
- Mindi Messmer (ORCID: https://orcid.org/0000-0001-9984-4016)
- Rittal Mehta (ORCID: https://orcid.org/0000-0002-0807-4763)
- Scott Leezer
- Roni Jacobsen (ORCID: https://orcid.org/0000-0002-3851-9786)
- Anitha S. John (ORCID: https://orcid.org/0000-0002-7355-6304)
- Anushree Agarwal (ORCID: https://orcid.org/0000-0001-8535-3152)
- Ali N. Zaidi (ORCID: https://orcid.org/0000-0001-8255-1591)
- Jamie L. Jackson (ORCID: https://orcid.org/0000-0002-1752-1377)
- Sneha Saraf
- Thomas Young (ORCID: https://orcid.org/0000-0002-2103-6585)
- Anita Mathews (ORCID: https://orcid.org/0000-0002-4311-6041)
- Ruth Phillippi
- Ronald J. Kanter
- Simran Singh
- Aliza Marlin
Institutions
- Cincinnati Children's Hospital Medical Center (US)
- Nationwide Children's Hospital (US)
- Children's Hospital of Philadelphia (US)
- Ochsner Health System (US)
- Children's National (US)
- University of Miami (US)
- University of California, Los Angeles (US)
- University of California, San Francisco (US)
- Cornell University (US)
- Columbia University Irving Medical Center (US)
- Sinai Hospital (US)
- University of Florida (US)
- NYU Langone Health (US)
- Children's Hospital Colorado (US)
- Louisiana Public Health Institute (US)
- Adult Congenital Heart Association (US)
- Duke University Health System (US)
- Miami Children's Hospital (US)
- Weill Cornell Medicine (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- JAMA Network Open
- Published
- 2024-10-16
- DOI
- https://doi.org/10.1001/jamanetworkopen.2024.39629
- Citations
- 18
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 6.96