Measuring eating disorders in Autistic people: a proposal for future research

While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs <i>with</i> autistic people before carefully considering which analytical strategies are used in the Autistic population.

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Publication Details

Journal
Eating Disorders
Published
2024-10-16
DOI
https://doi.org/10.1080/10640266.2024.2416340
Citations
8
Primary Topic
Child Nutrition and Feeding Issues
Type
article
Field-Weighted Citation Impact
3.08

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article

Measuring eating disorders in Autistic people: a proposal for future research

Karri Gillespie‐Smith, Fiona Duffy, Emy Nimbley, Elizabeth H. Evans et al.
8 citations
Eating Disorders
Child Nutrition and Feeding Issues
3.08
article

Measuring eating disorders in Autistic people: a proposal for future research

Karri Gillespie‐Smith, Fiona Duffy, Emy Nimbley, Elizabeth H. Evans, Keren MacLennan, Phaedra Longhurst
article en
8 citations

Abstract

While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs <i>with</i> autistic people before carefully considering which analytical strategies are used in the Autistic population.

Eating DisordersVol. 33(6)
NHS Lothian (GB), Durham University (GB), Anglia Ruskin University (GB), University of Edinburgh (GB)
UK Research and Innovation, National Institute for Health and Care Research, Arts and Humanities Research Council, Medical Research Council, Economic and Social Research Council, Medical Research Foundation
Openalex Percentile: Top 7%
Child Nutrition and Feeding Issues
3.08
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