Clinical Presentation, Care Pathways, and Delays in Access to Specialized Care in Patients With Systemic Lupus Erythematosus: A Study From Lupus Midwest Network (<scp>LUMEN</scp>)
Patients follow a heterogeneous pathway to receive care. One-fourth of patients experienced delays accessing SLE-specialized care, which was associated with disease-related damage. Fewer manifestations, hematologic manifestations, or antiphospholipid antibodies were associated with delays.
Authors
- Hannah E. Langenfeld
- Alain Sánchez-Rodríguez (ORCID: https://orcid.org/0000-0001-5758-0542)
- José A. Meade‐Aguilar (ORCID: https://orcid.org/0000-0003-1582-4822)
- Gabriel Figueroa‐Parra (ORCID: https://orcid.org/0000-0002-6077-8899)
- Kamil E. Barbour (ORCID: https://orcid.org/0000-0003-0546-6742)
- Alí Duarte‐García (ORCID: https://orcid.org/0000-0003-1749-5719)
- Kurt J. Greenlund (ORCID: https://orcid.org/0000-0002-9185-2107)
- Alanna M. Chamberlain (ORCID: https://orcid.org/0000-0003-1888-9584)
- Jeffrey X. Yang (ORCID: https://orcid.org/0000-0002-6246-1967)
- Uma Thanarajasingam (ORCID: https://orcid.org/0000-0002-4197-4907)
- Cynthia S. Crowson (ORCID: https://orcid.org/0000-0001-5847-7475)
- Andrew C. Hanson (ORCID: https://orcid.org/0000-0003-4673-5486)
Institutions
- Centers for Disease Control and Prevention (US)
- Mayo Clinic (US)
Publication Details
- Journal
- Arthritis Care & Research
- Published
- 2024-10-14
- DOI
- https://doi.org/10.1002/acr.25445
- Citations
- 1
- Primary Topic
- Systemic Lupus Erythematosus Research
- Type
- article
- Field-Weighted Citation Impact
- 0.47
Funders
- National Institute on Aging
- National Center for Advancing Translational Sciences