Co-Creating the Experience of Consent for Newborn Genome Sequencing: The Generation Study
Involving parents in co-creation has broadened the perspective of what constitutes informed decision-making for newborn genome sequencing. Iterative rounds of research and design can provide tangible paths forward, supporting the successful implementation of informed decision-making.
Authors
- Harriet Etheredge (ORCID: https://orcid.org/0000-0002-2581-5754)
- Mathilde Leblond
- Amanda Pichini (ORCID: https://orcid.org/0000-0002-1776-562X)
- Jonathan Roberts
- Mirabai Galati
- Nancy Willacy
- Öznur Özkurt
Institutions
- Genomics England (GB)
Publication Details
- Journal
- Public Health Genomics
- Published
- 2024-10-11
- DOI
- https://doi.org/10.1159/000541935
- Citations
- 11
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 9.34