Improving organisation to improve care: ERN ReCONNET organisational reference model for systemic sclerosis patients’ care pathway
The organisational model emerged from our investigation emphasises that the organisation of specific services for systemic sclerosis treatment should be organised as a solid support for implementing the existing recommendations on systemic sclerosis management in real life.
Authors
- Cristina Ponte (ORCID: https://orcid.org/0000-0002-3989-1192)
- Jeska K de Vries‐Bouwstra (ORCID: https://orcid.org/0000-0002-5624-1415)
- Gonçalo Boleto (ORCID: https://orcid.org/0000-0001-5891-1868)
- Luc Mouthon (ORCID: https://orcid.org/0000-0002-7021-9492)
- Charissa Frank (ORCID: https://orcid.org/0009-0001-4004-5153)
- Marie Vanthuyne
- Rita Schriemer (ORCID: https://orcid.org/0009-0006-2591-9971)
- P. Martin van Hagen (ORCID: https://orcid.org/0000-0003-0854-2368)
- Silvia Sandulescu
- Simone Ticciati (ORCID: https://orcid.org/0000-0002-6390-4045)
- Eric HACHULLA (ORCID: https://orcid.org/0000-0001-7432-847X)
- Anna Viola Taulaigo (ORCID: https://orcid.org/0000-0003-3475-4647)
- Carlomaurizio Montecucco (ORCID: https://orcid.org/0000-0001-8263-3925)
- Vanessa Smith (ORCID: https://orcid.org/0000-0001-6271-7945)
- Valentina Lorenzoni (ORCID: https://orcid.org/0000-0002-9948-0301)
- Sara Cannizzo (ORCID: https://orcid.org/0000-0001-7675-6611)
- Ilaria Galetti (ORCID: https://orcid.org/0000-0001-9595-7582)
- Alberto Sulli (ORCID: https://orcid.org/0000-0003-3674-4880)
- Virgil A. S. H. Dalm (ORCID: https://orcid.org/0000-0001-5945-4435)
- Frédéric Houssiau (ORCID: https://orcid.org/0000-0003-1451-083X)
- Sue Farrington
- Rosaria Talarico (ORCID: https://orcid.org/0000-0003-4268-9611)
- Leopoldo Trieste
- Jeanette Andersen (ORCID: https://orcid.org/0000-0001-8848-9039)
- Simone Barsotti (ORCID: https://orcid.org/0000-0002-4864-4505)
- João Eurico Fonseca (ORCID: https://orcid.org/0000-0003-1432-3671)
- Jacob M. van Laar (ORCID: https://orcid.org/0000-0001-5544-5785)
- Diana Marinello (ORCID: https://orcid.org/0000-0002-5537-6043)
- Catarina Leite (ORCID: https://orcid.org/0000-0002-4613-0164)
- Andrea Doria (ORCID: https://orcid.org/0000-0003-0548-4983)
- Ilaria Cavazzana (ORCID: https://orcid.org/0000-0002-2757-7120)
- Alain Cornet (ORCID: https://orcid.org/0000-0001-7344-7258)
- M. Pha (ORCID: https://orcid.org/0000-0003-3727-2782)
- Silvia Bellando-Randone (ORCID: https://orcid.org/0000-0002-5926-6263)
- Barbara Vigone
- Laura Damian (ORCID: https://orcid.org/0000-0002-5735-3929)
- Vera Bernardino (ORCID: https://orcid.org/0000-0002-8492-5910)
- Margherita Zen
- Veronica Codullo (ORCID: https://orcid.org/0000-0003-2557-8514)
- Silvia Aguilera
- Julia Spierings (ORCID: https://orcid.org/0000-0002-2546-312X)
- Méryem-Maud Farhat (ORCID: https://orcid.org/0000-0002-9098-4984)
- Ilaria Palla (ORCID: https://orcid.org/0000-0002-4126-5721)
- Maria Grazia Lazzaroni (ORCID: https://orcid.org/0000-0002-1860-6866)
- Giuseppe Turchetti (ORCID: https://orcid.org/0000-0002-1877-5459)
- Marta Mosca
- Maarten Limper (ORCID: https://orcid.org/0000-0002-4859-3250)
- Alessandra Della Rossa (ORCID: https://orcid.org/0000-0002-3165-1565)
- K. Polfliet
- Maurizio Cutolo (ORCID: https://orcid.org/0000-0002-4548-5334)
- Gema Cutillas
- Marco Esteves
- Gabi Niehaus
- Eva Ceccatelli
- Marco Matucci Cerinic
- Lorenzo Beretta
- Angela Tincani
- Natasha Toplak
- E Gómez
- Gerd Burmester
- Ulf Müeller-Ladner
- Stefano Bombardieri
Institutions
- University of Pisa (IT)
- Cliniques Universitaires Saint-Luc (BE)
- University of Padua (IT)
- University of Lisbon (PT)
- University of Ljubljana (SI)
- Vita-Salute San Raffaele University (IT)
- Inserm (FR)
- Scuola Superiore Sant'Anna (IT)
- Utrecht University (NL)
- Justus-Liebig-Universität Gießen (DE)
- Université Paris Cité (FR)
- Université de Lille (FR)
- Leiden University Medical Center (NL)
- Ghent University Hospital (BE)
- Ljubljana University Medical Centre (SI)
- Erasmus MC (NL)
- Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico (IT)
- University Medical Center Utrecht (NL)
- Centre Hospitalier Universitaire de Lille (FR)
- Humboldt-Universität zu Berlin (DE)
- Hôpital Cochin (FR)
- Assistance Publique – Hôpitaux de Paris (FR)
- Centro Hospitalar Lisboa Norte (PT)
- Agencia Española de Consumo, Seguridad Alimentaría y Nutrición (ES)
- Scleroderma and Raynaud's UK (GB)
- Hospital Curry Cabral (PT)
- Centre Hospitalier Universitaire de Martinique (MQ)
- Berlin Institute of Health at Charité - Universitätsmedizin Berlin (DE)
- VIB-UGent Center for Inflammation Research (BE)
- Scleroderma Foundation (US)
- Ospedale Policlinico San Martino (IT)
- Hospital de Santa Maria (PT)
- Ospedale di Livorno (IT)
- Policlinico San Matteo Fondazione (IT)
- Istituti di Ricovero e Cura a Carattere Scientifico (IT)
- Spitalul Clinic Județean de Urgență Cluj-Napoca (RO)
- Azienda Ospedaliera Universitaria Pisana (IT)
- Istituto di Ricovero e Cura a Carattere Scientifico San Raffaele (IT)
- University of Florence (IT)
- Freie Universität Berlin (DE)
- University of Brescia (IT)
- Universidade Nova de Lisboa (PT)
- University of Genoa (IT)
- UCLouvain (BE)
- University of Minho (PT)
Publication Details
- Journal
- Journal of Scleroderma and Related Disorders
- Published
- 2024-10-07
- DOI
- https://doi.org/10.1177/23971983241269109
- Primary Topic
- Systemic Sclerosis and Related Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- European Commission