A Clinical Outcomes Data Archive for a Comprehensive Fetal Diagnosis and Treatment Center
5,394,106 data points were validated for 7,662 patients across 12 conditions. 2% of data points were found to be unreliable or undocumented. 91% of data points were sourced from the EHR. Eighty-five percent of condition-specific variables required manual chart abstraction. The study conducted with CODA was able to contribute to 18 other studies. CODA successfully merges EHR-sourced and manually abstracted documentation for longitudinal study of the maternal-child dyad.
Authors
- Matthew Goldshore (ORCID: https://orcid.org/0000-0003-4185-2042)
- Edward R. Oliver (ORCID: https://orcid.org/0000-0002-5821-5085)
- Natalie E. Rintoul (ORCID: https://orcid.org/0000-0001-6330-6750)
- Thomas A. Reynolds (ORCID: https://orcid.org/0000-0002-5613-8696)
- Howard B. Panitch (ORCID: https://orcid.org/0000-0001-8440-283X)
- Catherine M. Avitabile (ORCID: https://orcid.org/0000-0002-2354-5447)
- Leny Mathew (ORCID: https://orcid.org/0000-0002-7735-4857)
- Sierra Land (ORCID: https://orcid.org/0000-0002-8688-7786)
- Gregory G. Heuer (ORCID: https://orcid.org/0000-0002-1989-0141)
- N. Scott Adzick (ORCID: https://orcid.org/0000-0003-2132-8606)
- Juliana S. Gebb (ORCID: https://orcid.org/0000-0001-5829-1961)
- Elizabeth E. Foglia (ORCID: https://orcid.org/0000-0002-9925-5219)
- Lori J. Howell (ORCID: https://orcid.org/0000-0003-4112-9292)
- Sabrina Flohr (ORCID: https://orcid.org/0000-0003-0828-4338)
- Holly L. Hedrick
- Anne Ades
Institutions
- Children's Hospital of Philadelphia (US)
Publication Details
- Journal
- Fetal Diagnosis and Therapy
- Published
- 2024-10-08
- DOI
- https://doi.org/10.1159/000541877
- Citations
- 8
- Primary Topic
- Prenatal Screening and Diagnostics
- Type
- article
- Field-Weighted Citation Impact
- 8.87