Linking the ECRIN Metadata Repository with the BBMRI-ERIC Directory to connect clinical studies with related biobanks and collections

The analysis with existing data sources indicated that links between the BBMRI-ERIC and ECRIN collections exist, but also that they would be difficult to continuously identify and maintain without a great deal of manual work which neither organisation could support. The question arises whether, in the future, systems could be put into place to make the exchange of information and the linkage of identifiers almost automatic.

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Publication Details

Journal
Open Research Europe
Published
2024-10-07
DOI
https://doi.org/10.12688/openreseurope.17131.2
Primary Topic
Research Data Management Practices
Type
article
Field-Weighted Citation Impact
0.00

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article

Linking the ECRIN Metadata Repository with the BBMRI-ERIC Directory to connect clinical studies with related biobanks and collections

Petr Holub, Francesca Frexia, Giovanni Delussu, Luca Pireddu et al.
Open Research Europe
Research Data Management Practices
article

Linking the ECRIN Metadata Repository with the BBMRI-ERIC Directory to connect clinical studies with related biobanks and collections

Petr Holub, Francesca Frexia, Giovanni Delussu, Luca Pireddu, Steve Canham, Christian Ohmann, Alessandro Sulis, Kurt Majcen, Vittorio Meloni
article en

Abstract

The analysis with existing data sources indicated that links between the BBMRI-ERIC and ECRIN collections exist, but also that they would be difficult to continuously identify and maintain without a great deal of manual work which neither organisation could support. The question arises whether, in the future, systems could be put into place to make the exchange of information and the linkage of identifiers almost automatic.

Open Research EuropeVol. 4
Center for Advanced Studies Research and Development in Sardinia (IT), Biobanking and Biomolecular Resources Research Infrastructure Consortium (AT), European Clinical Research Infrastructure Network (FR)
European Commission, HORIZON EUROPE Framework Programme
Partnerships for the goals
Openalex Percentile: Top 73%
Research Data Management Practices
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Linking the ECRIN Metadata Repository with the BBMRI-ERIC Directory to connect clinical studies with related biobanks and collections — Petr Holub, Francesca Frexia, et al. · Open Research Europe (2024) | TGRS Research Map | TGRS