There Is More to Life Than Walking: A Qualitative Study ofSurvivorship Among Peer Mentors in the Spinal Cord InjuryCommunity

<b>Objective</b>: To identify factors impacting survivorship among people living with spinal cord injury (SCI) and volunteering in a peer mentorship program. <b>Research Method/Design</b>: Semi-structured interviews were conducted by a leader of a non-profit organization designed to promote independent living after SCI. Questions explored intrinsic factors such as resilience and emotional coping as well extrinsic factors such as family support and accessibility challenges that impacted their SCI survivorship journey. Two independent anonymous reviewers conducted thematic analysis to identify these factors. <b>Results</b>: Twenty-eight members of the SCI peer mentorship program participated. Four themes affecting survivorship were identified: <i>Sense of Achievement</i>, <i>Post-Injury Growth</i>, <i>Post-Injury Challenges</i>, and <i>Giving and Receiving Support</i>. Nearly all participants focused their responses on <i>Post-Injury Growth</i> and <i>Giving and Receiving Support</i> as reasons for their interest in serving as peer mentors. <b>Conclusions</b>: This study highlights a need for peer community integration following SCI and underscores the importance of using a community-driven participatory model to inform and guide research. Peer mentorship programs can link SCI survivors to mentors and facilitate other sources of social fulfillment and thus can have a profound impact on individuals' survivorship post-SCI. This study identified a <i>Sense of Achievement</i>, <i>Post-Injury Growth</i>, <i>Giving and Receiving Support</i>, and <i>Post-Injury Challenges</i> as factors that most impact the SCI survivorship journey. This community leader's work underscores the importance of cognitive framing and social networks in post-injury rehabilitation in this population. Future directions include analyzing the longitudinal effects of peer mentorship participation on life satisfaction and community building in individuals living with SCI.

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Publication Details

Journal
The Yale Journal of Biology and Medicine
Published
2024-09-30
DOI
https://doi.org/10.59249/yxeb6783
Citations
1
Primary Topic
Spinal Cord Injury Research
Type
article
Field-Weighted Citation Impact
0.42
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article

There Is More to Life Than Walking: A Qualitative Study ofSurvivorship Among Peer Mentors in the Spinal Cord InjuryCommunity

Teimur Kayani, Jonathan Sigworth, Benjamin Doolittle, Robert J. Cotter
1 citations
The Yale Journal of Biology and Medicine
Spinal Cord Injury Research
0.42
article

There Is More to Life Than Walking: A Qualitative Study ofSurvivorship Among Peer Mentors in the Spinal Cord InjuryCommunity

Teimur Kayani, Jonathan Sigworth, Benjamin Doolittle, Robert J. Cotter
article en
1 citations

Abstract

<b>Objective</b>: To identify factors impacting survivorship among people living with spinal cord injury (SCI) and volunteering in a peer mentorship program. <b>Research Method/Design</b>: Semi-structured interviews were conducted by a leader of a non-profit organization designed to promote independent living after SCI. Questions explored intrinsic factors such as resilience and emotional coping as well extrinsic factors such as family support and accessibility challenges that impacted their SCI survivorship journey. Two independent anonymous reviewers conducted thematic analysis to identify these factors. <b>Results</b>: Twenty-eight members of the SCI peer mentorship program participated. Four themes affecting survivorship were identified: <i>Sense of Achievement</i>, <i>Post-Injury Growth</i>, <i>Post-Injury Challenges</i>, and <i>Giving and Receiving Support</i>. Nearly all participants focused their responses on <i>Post-Injury Growth</i> and <i>Giving and Receiving Support</i> as reasons for their interest in serving as peer mentors. <b>Conclusions</b>: This study highlights a need for peer community integration following SCI and underscores the importance of using a community-driven participatory model to inform and guide research. Peer mentorship programs can link SCI survivors to mentors and facilitate other sources of social fulfillment and thus can have a profound impact on individuals' survivorship post-SCI. This study identified a <i>Sense of Achievement</i>, <i>Post-Injury Growth</i>, <i>Giving and Receiving Support</i>, and <i>Post-Injury Challenges</i> as factors that most impact the SCI survivorship journey. This community leader's work underscores the importance of cognitive framing and social networks in post-injury rehabilitation in this population. Future directions include analyzing the longitudinal effects of peer mentorship participation on life satisfaction and community building in individuals living with SCI.

The Yale Journal of Biology and MedicineVol. 97(3)
Stratford University (US), Yale University (US)
Gender equality
Openalex Percentile: Top 34%
Spinal Cord Injury Research
0.42
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