“It’s just getting the word out there”: Self-disclosure by people with young-onset dementia
This study provides a holistic understanding of people with young-onset dementia's experiences with self-disclosure and how these evolved. Policies should prioritize the creation of dementia-friendly communities, while recommendations for practice include integrating empowerment interventions and peer support into post-diagnostic support. These efforts will support individuals in their self-disclosure journey, promote social engagement and reduce stigma.
Authors
- Wei Qi Koh (ORCID: https://orcid.org/0000-0001-8196-1628)
- Katrina Scior (ORCID: https://orcid.org/0000-0002-4679-0090)
- Georgina Charlesworth (ORCID: https://orcid.org/0000-0002-5278-1756)
- Gianna Kohl (ORCID: https://orcid.org/0000-0002-8913-1247)
Institutions
- Department of Health and Social Care (GB)
- The University of Queensland (AU)
- North East London NHS Foundation Trust (GB)
- East London NHS Foundation Trust (GB)
- University College London (GB)
Publication Details
- Journal
- PLoS ONE
- Published
- 2024-09-30
- DOI
- https://doi.org/10.1371/journal.pone.0310983
- Citations
- 2
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 1.70
Funders
- Horizon 2020 Framework Programme
- H2020 Marie Skłodowska-Curie Actions