Real-World Data Versus Probability Surveys for Estimating Health Conditions at the State Level

Government statistical offices worldwide are under pressure to produce statistics rapidly and for more detailed geographies, to compete with unofficial estimates available from web-based big data sources or from private companies. Commonly suggested sources of improved health information are electronic health records (EHRs) and medical claims data. These data sources are collectively known as real world data (RWD) because they are generated from routine health care processes, and they are available for millions of patients. It is clear that RWD can provide estimates that are more timely and less expensive to produce- but a key question is whether or not they are very accurate. To test this, we took advantage of a unique health data source that includes a full range of sociodemographic variables and compare estimates using all of those potential weighting variables, versus estimates derived when only age and sex are available for weighting (as is common with most RWD sources). We show that not accounting for other variables can produce misleading, and quite inaccurate, health estimates.

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Publication Details

Journal
Journal of Survey Statistics and Methodology
Published
2024-09-28
DOI
https://doi.org/10.1093/jssam/smae036
Citations
2
Primary Topic
demographic modeling and climate adaptation
Type
article
Field-Weighted Citation Impact
0.98

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article

Real-World Data Versus Probability Surveys for Estimating Health Conditions at the State Level

Charity Hilton, Rachel Kaufmann, David A. Marker, Deborah B. Rolka et al.
2 citations
Journal of Survey Statistics and Methodology
demographic modeling and climate adaptation
0.98
article

Real-World Data Versus Probability Surveys for Estimating Health Conditions at the State Level

Charity Hilton, Rachel Kaufmann, David A. Marker, Deborah B. Rolka, Jon Duke, Jacob S Zelko, Richard L. Boyd
article en
2 citations

Abstract

Government statistical offices worldwide are under pressure to produce statistics rapidly and for more detailed geographies, to compete with unofficial estimates available from web-based big data sources or from private companies. Commonly suggested sources of improved health information are electronic health records (EHRs) and medical claims data. These data sources are collectively known as real world data (RWD) because they are generated from routine health care processes, and they are available for millions of patients. It is clear that RWD can provide estimates that are more timely and less expensive to produce- but a key question is whether or not they are very accurate. To test this, we took advantage of a unique health data source that includes a full range of sociodemographic variables and compare estimates using all of those potential weighting variables, versus estimates derived when only age and sex are available for weighting (as is common with most RWD sources). We show that not accounting for other variables can produce misleading, and quite inaccurate, health estimates.

Journal of Survey Statistics and MethodologyVol. 12(5)
Centers for Disease Control and Prevention (US), Northeastern University (US), Georgia Institute of Technology (US), National Center for Chronic Disease Prevention and Health Promotion (US), Georgia Tech Research Institute
Research Institute, Georgia Institute of Technology, Centers for Disease Control and Prevention
Openalex Percentile: Top 21%
demographic modeling and climate adaptation
0.98
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Real-World Data Versus Probability Surveys for Estimating Health Conditions at the State Level — Charity Hilton, Rachel Kaufmann, et al. · Journal of Survey Statistics and Methodology (2024) | TGRS Research Map | TGRS