Practices for promoting a child’s best interests in paediatric rehabilitation – Perspectives of professionals and parents

Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals (<i>n</i> = 27 [69%]), 3 with parents (<i>n</i> = 9 [23%]), and 3 individual interviews of paediatric neurologists (<i>n</i> = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.

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Publication Details

Journal
Journal of Child Health Care
Published
2024-09-28
DOI
https://doi.org/10.1177/13674935241287880
Citations
2
Primary Topic
Family and Disability Support Research
Type
article
Field-Weighted Citation Impact
1.28
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article

Practices for promoting a child’s best interests in paediatric rehabilitation – Perspectives of professionals and parents

Salla Sipari, Nea Vänskä, Leena M. Haataja
2 citations
Journal of Child Health Care
Family and Disability Support Research
1.28
article

Practices for promoting a child’s best interests in paediatric rehabilitation – Perspectives of professionals and parents

Salla Sipari, Nea Vänskä, Leena M. Haataja
article en
2 citations

Abstract

Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals (<i>n</i> = 27 [69%]), 3 with parents (<i>n</i> = 9 [23%]), and 3 individual interviews of paediatric neurologists (<i>n</i> = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.

Journal of Child Health CareVol. 29(4)
Helsinki Metropolia University of Applied Sciences (FI), University of Helsinki (FI), Helsinki University Hospital (FI)
Partnerships for the goals
Openalex Percentile: Top 19%
Family and Disability Support Research
1.28
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Practices for promoting a child’s best interests in paediatric rehabilitation – Perspectives of professionals and parents — Salla Sipari, Nea Vänskä, et al. · Journal of Child Health Care (2024) | TGRS Research Map | TGRS