Understanding the unmet support needs of young and young adult carers and their families

Support for children and young people who provide unpaid care is important to help prevent negative impacts of caregiving on their education, employment, mental health, and social relationships. We aimed to address an evidence gap about what services and support are needed from young carers' perspectives. We carried out focus groups or in-depth interviews with 133 carers aged 9-25 in England. Expressed unmet need for services and support could be grouped in three categories: support that would reduce or remove young people's need to provide care, help improve the lives of the people they care for, mitigate against impacts of providing care on their mental health, wellbeing, education, social participation and leisure activities, and, whilst they are still providing care, assist them in their caring role. Action is needed to address these currently unmet needs and implement young carers' and their families' rights to support.

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Institutions

Publication Details

Journal
PLoS ONE
Published
2024-09-26
DOI
https://doi.org/10.1371/journal.pone.0310766
Citations
6
Primary Topic
Family Support in Illness
Type
article
Field-Weighted Citation Impact
6.79

Funders

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article

Understanding the unmet support needs of young and young adult carers and their families

Jo Moriarty, Sara Gowen, Madeleine Stevens, Nicola Brimblecombe et al.
6 citations
PLoS ONE
Family Support in Illness
6.79
article

Understanding the unmet support needs of young and young adult carers and their families

Jo Moriarty, Sara Gowen, Madeleine Stevens, Nicola Brimblecombe, Robin Skyer
article en
6 citations

Abstract

Support for children and young people who provide unpaid care is important to help prevent negative impacts of caregiving on their education, employment, mental health, and social relationships. We aimed to address an evidence gap about what services and support are needed from young carers' perspectives. We carried out focus groups or in-depth interviews with 133 carers aged 9-25 in England. Expressed unmet need for services and support could be grouped in three categories: support that would reduce or remove young people's need to provide care, help improve the lives of the people they care for, mitigate against impacts of providing care on their mental health, wellbeing, education, social participation and leisure activities, and, whilst they are still providing care, assist them in their caring role. Action is needed to address these currently unmet needs and implement young carers' and their families' rights to support.

PLoS ONEVol. 19(9)
King's College London (GB), Sheffield Health and Social Care NHS Foundation Trust (GB), University of Southampton (GB), London School of Economics and Political Science (GB), University of Sheffield (GB)
National Institute for Health and Care Research, Health Services and Delivery Research Programme
Reduced inequalities
Openalex Percentile: Top 3%
Family Support in Illness
6.79
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