Economic burden and quality of life of caregivers of patients with sickle cell disease in the United Kingdom and France: a cross-sectional study
Caring for patients with SCD impacts the HRQoL and economic burden of caregivers. Further research to support the complex needs of SCD caregivers is required.
Authors
- Siobhan Bourke (ORCID: https://orcid.org/0000-0001-8861-9841)
- Giovanna Tedesco Barcelos (ORCID: https://orcid.org/0009-0009-1756-1190)
- Louise Longworth (ORCID: https://orcid.org/0000-0003-2512-4862)
- Yemi Oluboyede (ORCID: https://orcid.org/0000-0002-9891-8279)
- Martin Besser (ORCID: https://orcid.org/0000-0003-1004-6232)
- Sian Bissell O'Sullivan
Institutions
- LAM Foundation (US)
- Pfizer (Switzerland) (CH)
- Addenbrooke's Hospital (GB)
Publication Details
- Journal
- Journal of Patient-Reported Outcomes
- Published
- 2024-09-26
- DOI
- https://doi.org/10.1186/s41687-024-00784-y
- Citations
- 5
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 2.19
Funders
- Pfizer