The Key Features of a Genetic Nondiscrimination Policy
As the reach of genetic discrimination continues to evolve alongside developments in genomics, strategic policy responses that are harmonious at the international and state levels will be critical to address this phenomenon. In seeking to establish comprehensive frameworks, policymakers will need to be mindful of regional and local circumstances that influence the need for and efficacy of unique genetic nondiscrimination approaches across diverse contexts.
Authors
- Jamal Nasir (ORCID: https://orcid.org/0000-0001-6378-5616)
- Rosalyn Ryan (ORCID: https://orcid.org/0000-0002-5302-3973)
- Hrefna Dögg Gunnarsdóttir (ORCID: https://orcid.org/0000-0001-7276-1587)
- Dov Greenbaum (ORCID: https://orcid.org/0000-0003-4440-3090)
- Edward S. Dove (ORCID: https://orcid.org/0000-0003-4095-3677)
- Dianne Nicol (ORCID: https://orcid.org/0000-0002-6553-2839)
- Athira P. S. Nair (ORCID: https://orcid.org/0000-0002-7458-6943)
- Saumya Shekhar Jamuar (ORCID: https://orcid.org/0000-0003-2341-8349)
- Yann Joly (ORCID: https://orcid.org/0000-0002-8775-2322)
- Heidi Beate Bentzen (ORCID: https://orcid.org/0000-0001-8285-818X)
- Charles Dupras (ORCID: https://orcid.org/0000-0002-9194-3252)
- Guillaume Sillon (ORCID: https://orcid.org/0000-0001-9573-1209)
- Angus W. MacDonald (ORCID: https://orcid.org/0000-0003-4588-931X)
- Aisling de Paor (ORCID: https://orcid.org/0000-0002-6595-3852)
- Ian Stedman
- Jane Tiller (ORCID: https://orcid.org/0000-0003-3906-6632)
- Anya E. R. Prince (ORCID: https://orcid.org/0000-0002-0086-7881)
- Brian Hon‐Yin Chung (ORCID: https://orcid.org/0000-0002-7044-5916)
- Megan J. Doerr (ORCID: https://orcid.org/0000-0003-2383-5978)
- Margaret Otlowski (ORCID: https://orcid.org/0000-0003-4707-4325)
- Timo Minssen (ORCID: https://orcid.org/0000-0002-3286-4888)
- Miguel Ángel Ramiro Avilés (ORCID: https://orcid.org/0000-0002-8354-8244)
- Ma’n H. Zawati (ORCID: https://orcid.org/0000-0002-8905-6259)
- Diya Uberoi (ORCID: https://orcid.org/0000-0003-1344-6901)
- Audrey Lebret (ORCID: https://orcid.org/0000-0002-9862-6970)
- Nicole Palmour (ORCID: https://orcid.org/0000-0002-4163-9105)
- Hannah Kim (ORCID: https://orcid.org/0000-0003-2938-9745)
- Gratien Dalpé (ORCID: https://orcid.org/0000-0002-3049-3315)
- Carmen Ayuso (ORCID: https://orcid.org/0000-0002-9242-7065)
- Chih‐hsing Ho (ORCID: https://orcid.org/0000-0001-9255-1165)
- Palmira Granados-Moreno
- Mykhailo Arych (ORCID: https://orcid.org/0000-0002-0910-2332)
- Hazar Haidar (ORCID: https://orcid.org/0000-0001-5005-0012)
- Kshitij Kumar Singh (ORCID: https://orcid.org/0000-0001-8979-2996)
- Thalia Arawi (ORCID: https://orcid.org/0000-0003-0443-5821)
- Katherine D. Blizinsky
- Ine Van Hoyweghen (ORCID: https://orcid.org/0000-0002-9402-2918)
- Emma Kondrup (ORCID: https://orcid.org/0009-0007-3480-302X)
- Katherine Cheung (ORCID: https://orcid.org/0009-0003-3529-4109)
- Subhashini Chandrasekharan
- Mark A. Rothstein
- Yvonne Bombard
- Pilar Nicolás
Institutions
- University of Delhi (IN)
- University of Copenhagen (DK)
- University of Iowa (US)
- National University of Food Technologies (UA)
- University of Tasmania (AU)
- National Institutes of Health (US)
- Sage Bionetworks (US)
- University of Louisville (US)
- Johns Hopkins University (US)
- SingHealth (SG)
- University of Iceland (IS)
- University of the Basque Country (ES)
- Université du Québec à Rimouski (CA)
- University of Oslo (NO)
- University of Toronto (CA)
- Universidad de Alcalá (ES)
- York University (CA)
- Yonsei University (KR)
- Instituto de Salud Carlos III (ES)
- Ontario Genomics (CA)
- National University of Advanced Legal Studies (IN)
- Yale University (US)
- University of Northampton (GB)
- Institute of European and American Studies, Academia Sinica (TW)
- Centre for Biomedical Network Research on Rare Diseases (ES)
- KK Women's and Children's Hospital (SG)
- Duke-NUS Medical School (SG)
- Melbourne Genomics Health Alliance (AU)
- Dublin City University (IE)
- Unity Health Toronto
- McGill University (CA)
- Monash University (AU)
- Universidad Autónoma de Madrid (ES)
- Université de Montréal (CA)
- University of Hong Kong (HK)
- American University of Beirut (LB)
- University of Edinburgh (GB)
- KU Leuven (BE)
Publication Details
- Journal
- JAMA Network Open
- Published
- 2024-09-26
- DOI
- https://doi.org/10.1001/jamanetworkopen.2024.35355
- Citations
- 5
- Primary Topic
- Biomedical Ethics and Regulation
- Type
- article
- Field-Weighted Citation Impact
- 1.63