Burden in Multiple Sclerosis Caregivers: A Single-Center Experience

Objective: To analyze the relation between Zarit and the MSQol-54 scales in caregivers and patients with multiple sclerosis (MS). Methods: Our study included 167 caregivers of 153 patients with MS in a single center, from July 2021 to December 2023. Results: Evaluation of the Zarit score revealed a median score of 11 (IQR = 4–21.75). Up to 126 caregivers had a low burden level, while 8 had moderate–severe burden, and 1 caregiver showed a severe burden score. Correlation analysis revealed that the Zarit score significantly correlated positively with the following variables: patient age (r = 0.25) and EDSS (r = 0.40); and a significant negative correlation was observed with the following variables: Physical Health Composite Score (r = −0.48) and Mental Health Composite Score (r = −0.34). Conclusions: Most caregivers either carry a low burden or none, as well as an inverse correlation between the Zarit and the Physical and Mental Health composite scores of the MSQol-54 instrument.

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Publication Details

Journal
Sclerosis
Published
2024-09-22
DOI
https://doi.org/10.3390/sclerosis2030017
Primary Topic
Family Support in Illness
Type
article
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article

Burden in Multiple Sclerosis Caregivers: A Single-Center Experience

Guillermo J. Ruíz‐Argüelles, Juan Carlos Olivares‐Gazca, Guillermo J. Ruiz‐Delgado, Moisés Manuel Gallardo‐Pérez et al.
Sclerosis
Family Support in Illness
article

Burden in Multiple Sclerosis Caregivers: A Single-Center Experience

Guillermo J. Ruíz‐Argüelles, Juan Carlos Olivares‐Gazca, Guillermo J. Ruiz‐Delgado, Moisés Manuel Gallardo‐Pérez, Guillermo Ocaña‐Ramm, Miranda Melgar‐de‐la‐Paz, Olivia Lira‐Lara, Paola Negrete‐Rodríguez, Luis Enrique Hamilton‐Avilés, Gloria Erendy Cruz‐Pérez, Danae García‐Vélez
article en

Abstract

Objective: To analyze the relation between Zarit and the MSQol-54 scales in caregivers and patients with multiple sclerosis (MS). Methods: Our study included 167 caregivers of 153 patients with MS in a single center, from July 2021 to December 2023. Results: Evaluation of the Zarit score revealed a median score of 11 (IQR = 4–21.75). Up to 126 caregivers had a low burden level, while 8 had moderate–severe burden, and 1 caregiver showed a severe burden score. Correlation analysis revealed that the Zarit score significantly correlated positively with the following variables: patient age (r = 0.25) and EDSS (r = 0.40); and a significant negative correlation was observed with the following variables: Physical Health Composite Score (r = −0.48) and Mental Health Composite Score (r = −0.34). Conclusions: Most caregivers either carry a low burden or none, as well as an inverse correlation between the Zarit and the Physical and Mental Health composite scores of the MSQol-54 instrument.

SclerosisVol. 2(3)
Universidad Popular Autónoma del Estado de Puebla (MX), Universidad Veracruzana (MX), Universidad Anáhuac Puebla (MX), Clínica Ruiz (MX), Universidad de las Américas Puebla (MX)
Openalex Percentile: Top 74%
Family Support in Illness
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Burden in Multiple Sclerosis Caregivers: A Single-Center Experience — Guillermo J. Ruíz‐Argüelles, Juan Carlos Olivares‐Gazca, et al. · Sclerosis (2024) | TGRS Research Map | TGRS