Medical researchers' perception of sharing of metadata from case report forms
Data sharing commitments in DRKS revealed a low awareness of CRF sharing. Survey results showed generally strong support for CRF sharing, including the willingness to publish CRFs in a public registry, although legal and practical barriers were identified.
Authors
- Martin Dugas (ORCID: https://orcid.org/0000-0001-9740-0788)
- Alexandra Meidt (ORCID: https://orcid.org/0000-0001-9644-8771)
- Christoph U. Lehmann (ORCID: https://orcid.org/0000-0001-9559-4646)
- Carolin Walter (ORCID: https://orcid.org/0000-0002-5155-7728)
Institutions
- Heidelberg University (DE)
- University of Münster (DE)
- University Hospital Heidelberg (DE)
- The University of Texas Southwestern Medical Center (US)
Publication Details
- Journal
- Learning Health Systems
- Published
- 2024-09-15
- DOI
- https://doi.org/10.1002/lrh2.10456
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00