Inclusive measure development: amplifying the voices of adolescents and young adults with spina bifida in a new measure of benefit-finding and growth
This study produced a measure of benefit-finding and growth for youth with SB. Clinically, information about what youth with SB perceive to be their areas of strength and growth from their condition provides crucial insight into which factors to enhance in this population.
Authors
- Adrien M. Winning (ORCID: https://orcid.org/0000-0002-5286-4121)
- Olivia E. Clark (ORCID: https://orcid.org/0000-0001-7739-8967)
- Grayson N. Holmbeck (ORCID: https://orcid.org/0000-0002-2216-1927)
- Vicki S. Helgeson (ORCID: https://orcid.org/0000-0002-2099-4714)
- Colleen Stiles‐Shields (ORCID: https://orcid.org/0000-0002-6759-8380)
- Tessa K. Kritikos (ORCID: https://orcid.org/0000-0002-1506-4416)
- Zoe R. Smith (ORCID: https://orcid.org/0000-0002-4803-2744)
- Alana Encalade
- Maryse Hendrix
Institutions
- Loyola University Chicago (US)
- University of Illinois Chicago (US)
- University of Houston - Clear Lake (US)
- Carnegie Mellon University (US)
Publication Details
- Journal
- Journal of Pediatric Psychology
- Published
- 2024-09-23
- DOI
- https://doi.org/10.1093/jpepsy/jsae072
- Citations
- 2
- Primary Topic
- Spinal Dysraphism and Malformations
- Type
- article
- Field-Weighted Citation Impact
- 1.09
Funders
- March of Dimes Foundation
- Loyola University Chicago
- Society of Pediatric Psychology
- National Institute of Mental Health
- National Institute of Nursing Research
- National Institute of Child Health and Human Development
- Office of Behavioral and Social Sciences Research