‘I Live With Lynch. Cancer Worry Ebbs Into the Background, Then Something Brings It to the Fore.’ A Qualitative Interview Study Exploring How Lynch Syndrome Carriers Make Sense of Their Cancer Risks and Implications to Support Decision Making
This qualitative interview study provided in-depth insights from Lynch syndrome carriers about their lived experiences, informed by their values. Recommendations to empower carriers to make sense of genetic cancer risks and support decisions included accessible, trusted information, educated healthcare professionals, shared decision making, and joined-up integrated care pathways complemented by tailored decision aids.
Authors
- Elizabeth Bancroft (ORCID: https://orcid.org/0000-0002-5482-5660)
- Helen Hanson (ORCID: https://orcid.org/0000-0002-3303-8713)
- Rebecca Foster (ORCID: https://orcid.org/0000-0002-9320-4269)
- Mary Jane Esplen (ORCID: https://orcid.org/0000-0002-6034-2235)
- Lesley Turner (ORCID: https://orcid.org/0000-0003-1489-3471)
- Katherine Morton (ORCID: https://orcid.org/0000-0002-6674-0314)
- Kelly Kohut (ORCID: https://orcid.org/0000-0002-9852-2872)
- Katie M.G. Snape (ORCID: https://orcid.org/0000-0002-1739-7986)
- Karen Hurley
Institutions
- Cleveland Clinic (US)
- Royal Marsden NHS Foundation Trust (GB)
- Institute of Cancer Research (GB)
- University of Toronto (CA)
- University of Exeter (GB)
- St George’s University Hospitals NHS Foundation Trust (GB)
- University of Southampton (GB)
Publication Details
- Journal
- Psycho-Oncology
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1002/pon.9312
- Citations
- 8
- Primary Topic
- Genetic factors in colorectal cancer
- Type
- article
- Field-Weighted Citation Impact
- 3.40
Funders
- Cancer Research UK