National Registry for Childhood Onset Scleroderma I: Insights from the first 341 juvenile localized scleroderma patients
The study highlights need for earlier recognition of juvenile-onset localized scleroderma after demonstrating the delay in diagnosis and frequent extracutaneous manifestations with significant disease burden in a juvenile-onset localized scleroderma cohort. The benefits of systemic treatment and full extracutaneous manifestation screening in juvenile-onset localized scleroderma is supported.
Authors
- Kathryn S. Torok (ORCID: https://orcid.org/0000-0002-1662-143X)
- Leigh A. Stubbs (ORCID: https://orcid.org/0000-0002-3443-6561)
- Haley Havrilla (ORCID: https://orcid.org/0000-0002-2100-230X)
- Samantha Branton
Institutions
- University of Pittsburgh (US)
- Cook Children's Medical Center (US)
- Children's Hospital of Pittsburgh (US)
Publication Details
- Journal
- Journal of Scleroderma and Related Disorders
- Published
- 2024-09-23
- DOI
- https://doi.org/10.1177/23971983241272460
- Primary Topic
- Systemic Sclerosis and Related Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- Nancy Taylor Foundation for Chronic Diseases