Economic burden and health-related quality of life in patients with epidermolysis bullosa in Spain
. The social economic burden of EB, resulting from the high direct non-healthcare cost of informal care, and from the loss of productivity, accentuates the importance of not restricting cost analysis to direct healthcare costs. This substantiates that EB, particularly severe EB represents a significant hidden cost that should be revealed to society and should be considered in the support programmes for people who suffer from this disease, and in the economic evaluation of new treatments.
Authors
- Isaac Aranda-Reneo (ORCID: https://orcid.org/0000-0002-7311-2615)
- Álvaro Rafael Villar-Hernández
- Juan Oliva (ORCID: https://orcid.org/0000-0002-8997-0307)
- Julio López‐Bastida
- Luz María Peña-Longobardo (ORCID: https://orcid.org/0000-0001-7224-2189)
Institutions
- Hospital Doctor José Molina Orosa (ES)
- Servicio de Salud de Castilla La Mancha (ES)
- University of Castilla-La Mancha (ES)
Publication Details
- Journal
- Orphanet Journal of Rare Diseases
- Published
- 2024-09-23
- DOI
- https://doi.org/10.1186/s13023-024-03328-1
- Citations
- 4
- Primary Topic
- Skin and Cellular Biology Research
- Type
- article
- Field-Weighted Citation Impact
- 0.98
Funders
- Amryt Pharma
- Universidad de Castilla-La Mancha