Improving How Caregivers of People Living With Dementia Are Identified in the Electronic Health Record: Qualitative Study and Exploratory Chart Review
This exploratory chart review and qualitative interview study found that people with dementia frequently have multiple caregivers, whose roles and needs are captured inconsistently in the EHR. To address this concern, caregivers and clinical staff suggested that health systems should develop and test workflows to identify caregivers, assess their needs at multiple touchpoints, and record their information in extractable EHR fields.
Authors
- Kathy Gleason (ORCID: https://orcid.org/0000-0002-0487-9871)
- Marcela D. Blinka (ORCID: https://orcid.org/0000-0003-0369-9331)
- Rosalphie Quiles (ORCID: https://orcid.org/0009-0009-0896-107X)
- Jennifer L. Wolff (ORCID: https://orcid.org/0000-0002-7898-3903)
- Ariel R. Green (ORCID: https://orcid.org/0000-0003-4127-4617)
- Cynthia M. Boyd (ORCID: https://orcid.org/0000-0001-5642-9015)
- Elizabeth A. Bayliss (ORCID: https://orcid.org/0000-0002-5264-0670)
- Nancy L. Schoenborn (ORCID: https://orcid.org/0000-0001-5053-5132)
- Rebecca S. Boxer (ORCID: https://orcid.org/0000-0002-3715-616X)
- Tobie E Taylor McPhail
- Andrea E. Daddato (ORCID: https://orcid.org/0000-0001-6421-4217)
Institutions
- Kaiser Permanente (US)
- Johns Hopkins University (US)
- Johns Hopkins Medicine (US)
- University of California, Davis (US)
Publication Details
- Journal
- JMIR Aging
- Published
- 2024-09-23
- DOI
- https://doi.org/10.2196/59584
- Citations
- 3
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 1.63