04243 Bridging the gap: enhancing patient engagement through accessible medical information in the porphyrias. a case study in erythropoietic protoporphyria
This study, although limited by small sample size and the retrospective nature of the questionnaire, add to the literature and aid in our ability to effectively counsel patients and prescribe much-needed hormonal treatments.
Authors
- Kristen Wheeden (ORCID: https://orcid.org/0009-0006-7583-1441)
- Cythnia Levy
- Amy K. Dickey (ORCID: https://orcid.org/0000-0003-2979-9664)
- Liz Allan
- Anna K. Mann
Institutions
- Institut national de recherche en sciences et technologies du numérique (FR)
- Massachusetts General Hospital (US)
- University of Miami Health System (US)
Publication Details
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1136/bmjgast-2024-icpp.49
- Primary Topic
- Porphyrin Metabolism and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00