04127 Menstrual cycle-dependent symptoms in patients with acute hepatic porphyria – Data from the German Porphyria Registry (PoReGer)
All participants are required to provide informed consent (adults) or assent and parental permission (adolescents).Each participant will be remunerated for their time. ResultsThe study has been approved by an institutional review board (WCG IRB), and was initiated in May 2024.Enrollment is currently ongoing.The plan is to enroll a minimum of 100 adults and 25 adolescents
Authors
- Lea Gerischer (ORCID: https://orcid.org/0000-0001-5746-068X)
- Mona Mainert
- Sylvia Mechsner (ORCID: https://orcid.org/0000-0002-1095-0048)
- Eva Diehl-Wiesenecker (ORCID: https://orcid.org/0000-0002-4058-9337)
- Rajan Somasundaram (ORCID: https://orcid.org/0000-0003-3461-3326)
Institutions
- Humboldt-Universität zu Berlin (DE)
Publication Details
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1136/bmjgast-2024-icpp.52
- Primary Topic
- Porphyrin Metabolism and Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.00