Characterizing medical decision‐making in sickle cell disease during childhood: Qualitative perspectives of caregivers
Findings highlight how processes underlying caregivers' decision-making are directly influenced and informed by caregivers' lived experiences. Future work should develop provider-initiated collaborative interventions to support medical decision-making.
Authors
- Kristin A. Long (ORCID: https://orcid.org/0000-0001-8486-2545)
- Annelise Brochier (ORCID: https://orcid.org/0000-0002-1785-0277)
- Mari‐Lynn Drainoni (ORCID: https://orcid.org/0000-0001-7214-8037)
- Jenna Sandler Eilenberg (ORCID: https://orcid.org/0000-0002-5351-0827)
- Ariel O. Blakey (ORCID: https://orcid.org/0000-0001-5647-8650)
- Patricia L. Kavanagh (ORCID: https://orcid.org/0000-0002-3312-1576)
- Arvin Garg (ORCID: https://orcid.org/0000-0003-0839-2611)
- Christina M. Amaro (ORCID: https://orcid.org/0000-0003-2194-111X)
Institutions
- Boston University (US)
- Boston Medical Center (US)
- Children's Medical Center (US)
- Alfred I. duPont Hospital for Children (US)
- University of Massachusetts Chan Medical School (US)
- UMass Memorial Medical Center (US)
Publication Details
- Journal
- Pediatric Blood & Cancer
- Published
- 2024-09-20
- DOI
- https://doi.org/10.1002/pbc.31307
- Citations
- 1
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.44
Funders
- Boston Medical Center
- National Heart, Lung, and Blood Institute