Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together
Participants contextualized trust, the most prominent theme, within discussions of racism and health inequities. Relationships between the CBO and data teams bring hard data and human experience together for advocacy, education, improved care, and a platform for the SCD voice.
Authors
- Emily Riehm Meier (ORCID: https://orcid.org/0000-0002-7837-9239)
- Niani Coker
- Jay Desai (ORCID: https://orcid.org/0000-0002-3010-8501)
- Gary A. P. Gibson (ORCID: https://orcid.org/0000-0002-8161-7445)
- Shamaree J. Cromartie
- Susan Paulukonis (ORCID: https://orcid.org/0000-0002-0663-7657)
- Shammara Pope
- Sangeetha Lakshmanan
- Rae Blaylark
- Jennifer Fields (ORCID: https://orcid.org/0000-0003-3751-3582)
- Amanda Okolo (ORCID: https://orcid.org/0000-0002-2328-2085)
- Amanda Young (ORCID: https://orcid.org/0000-0003-2319-1594)
- Mandip Kaur (ORCID: https://orcid.org/0000-0003-3312-6075)
- Rebecca Aderojou
- Amanda Maresh
- L. Clifford Stephens
Publication Details
- Journal
- Progress in community health partnerships
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1353/cpr.2024.a937396
- Citations
- 1
- Primary Topic
- Hemoglobinopathies and Related Disorders
- Type
- article
- Field-Weighted Citation Impact
- 0.44