Establishing a national linked database for Fetal Alcohol Spectrum Disorder (FASD) in the UK: multi-method public and professional involvement to determine acceptability and feasibility
Multi-method and multidisciplinary public and professional involvement activities demonstrated support for a national linked database for FASD in the UK. Flexible, diverse, embedded stakeholder collaboration will be essential as we establish this database.
Authors
- Beverley Samways (ORCID: https://orcid.org/0000-0002-8883-7512)
- Cheryl McQuire (ORCID: https://orcid.org/0000-0003-0127-8015)
- Sandra Butcher
- Raja Mukherjee (ORCID: https://orcid.org/0000-0002-2171-928X)
- Sarah Harding (ORCID: https://orcid.org/0000-0001-9385-6307)
- Penny A. Cook (ORCID: https://orcid.org/0000-0001-6435-8050)
- Amy Dillon
- Andy Boyd (ORCID: https://orcid.org/0000-0002-8614-3728)
Institutions
- University Hospitals Bristol NHS Foundation Trust (GB)
- University of Bristol (GB)
- Science Wares (United States) (US)
- NIHR Bristol Biomedical Research Centre (GB)
- Health Data Research UK (GB)
- University of Salford (GB)
- Royal College of Psychiatrists (GB)
Publication Details
- Journal
- International Journal for Population Data Science
- Published
- 2024-09-19
- DOI
- https://doi.org/10.23889/ijpds.v9i1.2381
- Citations
- 1
- Primary Topic
- Prenatal Substance Exposure Effects
- Type
- article
- Field-Weighted Citation Impact
- 1.11