Patient and family views on research priorities and design of clinical trials and research studies in pediatric multiple sclerosis
Results highlighted the importance of a holistic approach to study design and a focus on the impact of disease on daily life to best engage patients and families in POMS clinical trials and research.
Authors
- Timothy Edward Lotze (ORCID: https://orcid.org/0009-0003-2898-1963)
- Mark Gorman (ORCID: https://orcid.org/0000-0003-3694-8832)
- Jayne Ness (ORCID: https://orcid.org/0000-0001-8017-0138)
- Yolanda Wheeler (ORCID: https://orcid.org/0000-0003-1391-4496)
- Lina Benson (ORCID: https://orcid.org/0000-0002-5393-0055)
- Teri Schreiner (ORCID: https://orcid.org/0000-0002-3816-812X)
- Tanuja Chitnis (ORCID: https://orcid.org/0000-0002-9897-4422)
- Gregory Scott Aaen (ORCID: https://orcid.org/0000-0002-0408-2053)
- Soe Mar (ORCID: https://orcid.org/0000-0001-8449-2003)
- Ellen O’Donnell (ORCID: https://orcid.org/0000-0002-6971-8331)
- Allison Schuette (ORCID: https://orcid.org/0000-0003-0968-0340)
- Theron Charles Casper (ORCID: https://orcid.org/0000-0001-7512-1294)
- Moses Rodriguez
- Jan‐Mendelt Tillema (ORCID: https://orcid.org/0000-0001-6933-8913)
- Michael Waltz (ORCID: https://orcid.org/0009-0008-8859-0362)
Institutions
- Boston Children's Hospital (US)
- St. Louis Children's Hospital (US)
- University of Utah (US)
- Children's of Alabama (US)
- Massachusetts General Hospital (US)
- Children's Hospital Colorado (US)
- Mayo Clinic in Arizona (US)
- Texas Children's Hospital (US)
- Loma Linda University Children's Hospital (US)
- University of Colorado Denver (US)
Publication Details
- Journal
- Multiple Sclerosis Journal
- Published
- 2024-09-17
- DOI
- https://doi.org/10.1177/13524585241274580
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Multiple Sclerosis Society