<i>“You just can’t do that in dementia care”:</i> Barriers to partnership working within dementia services for people from south Asian communities

<b>Background:</b> People from South Asian communities are under-represented at all levels of dementia services. Consequently, there is pressure for the statutory sector to deliver services in partnership with Voluntary, Community, Faith and Social Enterprises (VCFSEs). This study set out to explore the constraints to effective partnership working which prevent dementia care from being delivered in an equitable way.<b>Methods:</b> Data collection consisted of two phases. First, we interviewed seven people with experience of partnership working and developed three fictional vignettes that were representative of the challenges they faced. We then used these vignettes to stimulate discussion in focus groups and interviews with 13 VCFSE and 16 statutory sector participants. Data was analysed using deductive thematic analysis.<b>Findings:</b> Three themes were developed during the analysis. First, White British-centric services focused on the challenges for statutory services in meeting the needs of South Asians, developing flexible, responsive services and making inclusive partnership working truly meaningful. Second, VCFSE participants (but not statutory service participants) associated a failure to deliver effective partnership working with unconscious bias operating within systems, leading to the devaluing of their expertise and to their views being ignored. Finally, participants emphasised the need to prioritise relationships if they were to meet the challenges of developing partnership working.<b>Conclusion:</b> We identified three constraints acting to prevent effective partnership working. First, the different meanings that statutory and VCFSE participants attach to challenges threatens their ability to develop a shared understanding of the needs of communities. Second, a reluctance to explicitly address service deficiencies can mean that stereotypes remain unaddressed. Finally, while both parties lacked power to change the fundamentals of service delivery, power and resources were also unbalanced with VCSFE services being more reliant on the statutory sector.

Authors

Institutions

Publication Details

Journal
Dementia
Published
2024-09-14
DOI
https://doi.org/10.1177/14713012241283189
Citations
1
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
0.85

Funders

Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

“You just can’t do that in dementia care”: Barriers to partnership working within dementia services for people from south Asian communities

Sahdia Parveen, Richard Cheston, David Truswell, Jabeer Butt et al.
1 citations
Dementia
Mental Health and Patient Involvement
0.85
article

“You just can’t do that in dementia care”: Barriers to partnership working within dementia services for people from south Asian communities

Sahdia Parveen, Richard Cheston, David Truswell, Jabeer Butt, Emily Dodd, Karan Jutlla, Paula Smith, NS Woodstoke, G. Fry
article en
1 citations

Abstract

<b>Background:</b> People from South Asian communities are under-represented at all levels of dementia services. Consequently, there is pressure for the statutory sector to deliver services in partnership with Voluntary, Community, Faith and Social Enterprises (VCFSEs). This study set out to explore the constraints to effective partnership working which prevent dementia care from being delivered in an equitable way.<b>Methods:</b> Data collection consisted of two phases. First, we interviewed seven people with experience of partnership working and developed three fictional vignettes that were representative of the challenges they faced. We then used these vignettes to stimulate discussion in focus groups and interviews with 13 VCFSE and 16 statutory sector participants. Data was analysed using deductive thematic analysis.<b>Findings:</b> Three themes were developed during the analysis. First, White British-centric services focused on the challenges for statutory services in meeting the needs of South Asians, developing flexible, responsive services and making inclusive partnership working truly meaningful. Second, VCFSE participants (but not statutory service participants) associated a failure to deliver effective partnership working with unconscious bias operating within systems, leading to the devaluing of their expertise and to their views being ignored. Finally, participants emphasised the need to prioritise relationships if they were to meet the challenges of developing partnership working.<b>Conclusion:</b> We identified three constraints acting to prevent effective partnership working. First, the different meanings that statutory and VCFSE participants attach to challenges threatens their ability to develop a shared understanding of the needs of communities. Second, a reluctance to explicitly address service deficiencies can mean that stereotypes remain unaddressed. Finally, while both parties lacked power to change the fundamentals of service delivery, power and resources were also unbalanced with VCSFE services being more reliant on the statutory sector.

DementiaVol. 24(4)
University of Wolverhampton (GB), University of Bradford (GB), University of the West of England (GB), Toronto Dementia Research Alliance (CA), Equality Now (US), Race Equality Foundation (GB), Dementia UK (GB), The Equality Trust (GB), University of Bath (GB)
National Institute for Health and Care Research, Research for Patient Benefit Programme
Openalex Percentile: Top 22%
Mental Health and Patient Involvement
0.85
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.