Recruitment of informal caregivers into community oncology research studies: results from the 2022 Landscape Assessment
Understanding the experiences of community oncology practices in recruiting informal (unpaid/family) caregivers into research studies can inform strategies to improve caregiver enrollment. We used data from the 2022 National Cancer Institute Community Oncology Research Program (NCORP) Landscape Assessment to describe the experience of recruiting informal caregivers for research studies in community oncology practices. Among 258 practice groups, only one-third (30%, 78/258) reported prior experience recruiting informal caregivers for research studies. In multivariable logistic analyses, having a greater number of oncology providers (increase per 10 providers, adjusted odds ratio [AOR] 1.16, 95% CI 1.03-1.31) and having advanced practice providers (APPs) involved in research (AOR 2.17, 95% CI 1.05-4.48) were significantly associated with prior experience recruiting caregivers. In conclusion, many community oncology practices lack caregiver recruitment experience and may benefit from education, integration of APPs/caregiver stakeholders in research infrastructure, and/or other strategies to improve caregiver recruitment.
Authors
- Supriya G. Mohile (ORCID: https://orcid.org/0000-0003-0867-327X)
- Sindhuja Kadambi (ORCID: https://orcid.org/0000-0003-0875-1864)
- Charles Stewart Kamen (ORCID: https://orcid.org/0000-0002-4219-4320)
- Marie Flannery (ORCID: https://orcid.org/0000-0003-2957-8482)
- E. C. Wood (ORCID: https://orcid.org/0000-0003-3890-4040)
- Kathryn E. Weaver (ORCID: https://orcid.org/0000-0001-9006-4064)
- Katherine R. Sterba (ORCID: https://orcid.org/0000-0001-9780-8695)
- Kah Poh Loh (ORCID: https://orcid.org/0000-0002-6978-0418)
- Karen Michelle Mustian (ORCID: https://orcid.org/0000-0001-6525-7518)
- Gary R. Morrow (ORCID: https://orcid.org/0000-0002-7506-926X)
- Alexander Montes
- Allison Magnuson (ORCID: https://orcid.org/0000-0002-0968-8265)
- Christa Braun‐Inglis (ORCID: https://orcid.org/0000-0003-0051-5533)
- Eva Culakova (ORCID: https://orcid.org/0000-0002-9852-6515)
- Chandylen L. Nightingale (ORCID: https://orcid.org/0000-0002-2275-9849)
- Umang Gada
- Sarah Strause
- Ying Wang (ORCID: https://orcid.org/0000-0003-4965-6986)
- Sule Yilmaz (ORCID: https://orcid.org/0000-0002-6663-9291)
Institutions
- University of Hawaiʻi at Mānoa (US)
- University of Hawaii System (US)
- Medical University of South Carolina (US)
- University of Rochester Medical Center (US)
- Cancer Center of Hawaii (US)
- National Cancer Institute (US)
- University of Hawaii Cancer Center
- Wake Forest University (US)
- University of Rochester (US)
Publication Details
- Journal
- The Oncologist
- Published
- 2024-09-12
- DOI
- https://doi.org/10.1093/oncolo/oyae247
- Citations
- 1
- Primary Topic
- Palliative Care and End-of-Life Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.54
Funders
- National Institutes of Health
- National Cancer Institute