Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research
PPI offers potential for patient empowerment in clinical trials, even when its primary goal may be research quality. Elements like participation, sharing opinions, and active engagement can contribute to patient empowerment. Nonetheless, some expectations tied to empowerment might not be met within the constraints of clinical research. To empower patients, stakeholders must be explicit about what empowerment means in their research, engage in transparent communication about its realistic scope, and continuously reflect on how empowerment can be fostered and sustained within the research process.
Authors
- Imke Schilling (ORCID: https://orcid.org/0000-0002-3094-2811)
- Ansgar Gerhardus (ORCID: https://orcid.org/0000-0003-3637-7419)
Institutions
- University of Bremen (DE)
Publication Details
- Journal
- BMC Medical Research Methodology
- Published
- 2024-09-13
- DOI
- https://doi.org/10.1186/s12874-024-02323-1
- Citations
- 16
- Primary Topic
- Mental Health and Patient Involvement
- Type
- article
- Field-Weighted Citation Impact
- 13.59
Funders
- Universität Bremen