Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research

PPI offers potential for patient empowerment in clinical trials, even when its primary goal may be research quality. Elements like participation, sharing opinions, and active engagement can contribute to patient empowerment. Nonetheless, some expectations tied to empowerment might not be met within the constraints of clinical research. To empower patients, stakeholders must be explicit about what empowerment means in their research, engage in transparent communication about its realistic scope, and continuously reflect on how empowerment can be fostered and sustained within the research process.

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Institutions

Publication Details

Journal
BMC Medical Research Methodology
Published
2024-09-13
DOI
https://doi.org/10.1186/s12874-024-02323-1
Citations
16
Primary Topic
Mental Health and Patient Involvement
Type
article
Field-Weighted Citation Impact
13.59

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article

Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research

Imke Schilling, Ansgar Gerhardus
16 citations
BMC Medical Research Methodology
Mental Health and Patient Involvement
13.59
article

Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research

Imke Schilling, Ansgar Gerhardus
article en
16 citations

Abstract

PPI offers potential for patient empowerment in clinical trials, even when its primary goal may be research quality. Elements like participation, sharing opinions, and active engagement can contribute to patient empowerment. Nonetheless, some expectations tied to empowerment might not be met within the constraints of clinical research. To empower patients, stakeholders must be explicit about what empowerment means in their research, engage in transparent communication about its realistic scope, and continuously reflect on how empowerment can be fostered and sustained within the research process.

BMC Medical Research MethodologyVol. 24(1)
University of Bremen (DE)
Universität Bremen
Gender equality
Openalex Percentile: Top 1%
Mental Health and Patient Involvement
13.59
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