Lessons for a learning health system: Effectively communicating to patients about research with their health information and biospecimens
Developing our understanding of patient data-sharing practices and integrating patient preferences into health system policy, through this work and continued exploration, contributes to building infrastructure that can be used to support the development of a learning health system across hospital systems nationally.
Authors
- Jodyn Platt (ORCID: https://orcid.org/0000-0003-4902-4903)
- Luyun Chen (ORCID: https://orcid.org/0000-0002-7749-9052)
- Katherine Hendy (ORCID: https://orcid.org/0000-0003-4128-1649)
- Kayte Spector‐Bagdady (ORCID: https://orcid.org/0000-0002-5851-6224)
- Alexandra H. Vinson (ORCID: https://orcid.org/0000-0002-9062-7899)
- Kerry A. Ryan (ORCID: https://orcid.org/0000-0002-0582-3693)
- Reshma Jagsi (ORCID: https://orcid.org/0000-0001-6562-1228)
- J. Denard Thomas
- Reema Hamasha (ORCID: https://orcid.org/0000-0001-7193-1038)
- Camille Giacobone
- Jessie M. Milne
Institutions
- Emory University (US)
- University of Michigan (US)
Publication Details
- Journal
- Learning Health Systems
- Published
- 2024-09-13
- DOI
- https://doi.org/10.1002/lrh2.10450
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 0.00
Funders
- National Cancer Institute
- National Institute of Biomedical Imaging and Bioengineering
- National Center for Advancing Translational Sciences