Advance Care Planning for Adults With Moderate-to-Severe Congenital Heart Disease: Readiness Trial
We found that adults with CHD are ready to have ACP conversations as part of their outpatient care. Patient preferences and values should guide ACP conversations; further research is needed to determine whether the modified Lyon Family-Centered ACP survey and ACHD-ACP video are helpful adjuncts for ACP in outpatient clinics.
Authors
- Michelle Keir
- David N. Campbell (ORCID: https://orcid.org/0000-0002-5570-3630)
- Jessica Jenkins
- Michelle A L Kotelko
- K. Poku
- Connor Hass
Institutions
- Alberta Health Services (CA)
- University of Calgary (CA)
- Calgary Laboratory Services (CA)
- Libin Cardiovascular Institute of Alberta (CA)
Publication Details
- Journal
- CJC Pediatric and Congenital Heart Disease
- Published
- 2024-09-12
- DOI
- https://doi.org/10.1016/j.cjcpc.2024.09.001
- Citations
- 3
- Primary Topic
- Congenital Heart Disease Studies
- Type
- article
- Field-Weighted Citation Impact
- 1.16
Funders
- Children's Hospital Foundation
- Alberta Children's Hospital Foundation
- Alberta Children's Hospital Research Institute