Involving the public in transforming the data landscape in Scotland

ObjectiveIn 2023 a public panel around public sector data use in Scotland was refreshed. The aim was to have a panel not only feedback on individual research projects but also the broader systems and processes of the data landscape in Scotland – from data sourcing and data storage, to data sharing and communicating research findings. Approach The public panel is a group of c. twenty members of the public and has, to date, focused on: Recruiting a representative sample of people Developing training materials to cover all aspects of the data system Building mechanisms to incorporate feedback into system change Increasing transparency of the panel discussions to support wider sector (including enhancing our website content and working to develop an annual report) Embedding findings from discussions with the public panel across the system in Scotland ResultsFeedback from panel members on recruitment and our approach has been positive. Panel discussions have already influenced ongoing work including synthetic data, website content and research projects. The panel have also begun advising on a system wide change from ‘just in time’ to ‘research ready’ data sets. This work followed a review of current data approvals processes across Scottish Safe Havens and the UK after COVID-19. Conclusions and ImplicationsThe current panel membership will run for two years after which a review of approach and impact will be carried out. Increasing transparency of the findings from the panels will enable organisations across the sector to benefit from this work.

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Publication Details

Journal
International Journal for Population Data Science
Published
2024-09-10
DOI
https://doi.org/10.23889/ijpds.v9i5.2784
Primary Topic
Privacy-Preserving Technologies in Data
Type
article
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article

Involving the public in transforming the data landscape in Scotland

Harriet M. Baird, Katie Oldfield
International Journal for Population Data Science
Privacy-Preserving Technologies in Data
article

Involving the public in transforming the data landscape in Scotland

Harriet M. Baird, Katie Oldfield
article en

Abstract

ObjectiveIn 2023 a public panel around public sector data use in Scotland was refreshed. The aim was to have a panel not only feedback on individual research projects but also the broader systems and processes of the data landscape in Scotland – from data sourcing and data storage, to data sharing and communicating research findings. Approach The public panel is a group of c. twenty members of the public and has, to date, focused on: Recruiting a representative sample of people Developing training materials to cover all aspects of the data system Building mechanisms to incorporate feedback into system change Increasing transparency of the panel discussions to support wider sector (including enhancing our website content and working to develop an annual report) Embedding findings from discussions with the public panel across the system in Scotland ResultsFeedback from panel members on recruitment and our approach has been positive. Panel discussions have already influenced ongoing work including synthetic data, website content and research projects. The panel have also begun advising on a system wide change from ‘just in time’ to ‘research ready’ data sets. This work followed a review of current data approvals processes across Scottish Safe Havens and the UK after COVID-19. Conclusions and ImplicationsThe current panel membership will run for two years after which a review of approach and impact will be carried out. Increasing transparency of the findings from the panels will enable organisations across the sector to benefit from this work.

International Journal for Population Data ScienceVol. 9(5)
Health Data Research UK (GB)
Openalex Percentile: Top 87%
Privacy-Preserving Technologies in Data
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