Receiving and adjusting to a diagnosis of ALS: A qualitative study with informal caregivers
Diagnosis communication that is clear, empathetic, and adjusted to the needs of the patients as well as their caregivers is critical. More work is needed to improve diagnosis communication for ALS patients. Receiving the diagnosis of ALS leads to complete changes in life of caregivers. It is therefore necessary that medical professionals provide adequate support that allows them to plan for their future.
Authors
- Luzia M. Iseli (ORCID: https://orcid.org/0000-0002-6969-8561)
- Tenzin Wangmo (ORCID: https://orcid.org/0000-0003-0857-0510)
- Christopher Poppe (ORCID: https://orcid.org/0000-0002-1267-6580)
Institutions
- University of Basel (CH)
- University Hospital of Basel (CH)
- Charité - Universitätsmedizin Berlin (DE)
Publication Details
- Journal
- Palliative & Supportive Care
- Published
- 2024-09-09
- DOI
- https://doi.org/10.1017/s1478951524001044
- Citations
- 4
- Primary Topic
- Amyotrophic Lateral Sclerosis Research
- Type
- article
- Field-Weighted Citation Impact
- 1.48
Funders
- Schweizerische Akademie der Medizinischen Wissenschaften