H049 Does social support predict quality of life for carers of people with Huntington’s disease?

<h3>Background</h3> Previous research has investigated predictors of quality of life (QoL) for carers of people with Huntington’s disease (HD) such as demographics, caring characteristics and illness-related variables of the person with HD. However, the investigation of psychosocial variables has been limited. Here we use data from Enroll-HD to investigate the importance of social support for carer QoL. <h3>Aims</h3> 1) To investigate whether social support predicts QoL for HD carers when controlling for demographics and HD illness-related variables. 2) To investigate whether social support buffers (i.e. moderates) the relationship between illness-related variables and QoL. <h3>Methods</h3> Participants were 880 carers of people with manifest HD enrolled in Enroll-HD. Multiple regressions were conducted to predict two subscales of the HD QoL for carers questionnaire (positive and negative feelings). Predictors were carer demographics, HD illness-related variables (behavioural/psychological, cognitive and motor difficulties and functional ability), and social support (satisfaction with family relationships and friendships). Moderation analyses tested whether the social support variables moderated the relationship between illness-related variables and positive and negative feelings. <h3>Results</h3> The two regression models were significant predicting 18% and 30% of the variance (for negative and positive feelings respectively). Both social support variables were significant independent predictors of the QoL in both models. Social support accounted for 9% and 21% of the variance (for negative and positive feelings respectively). All moderation models were non-significant. <h3>Conclusions</h3> Contextual factors such as social support are important for QoL for HD carers, although social support may not buffer the negative effects of symptoms of HD.

Authors

Institutions

Publication Details

Published
2024-09-01
DOI
https://doi.org/10.1136/jnnp-2024-ehdn.279
Primary Topic
Aging, Elder Care, and Social Issues
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

H049 Does social support predict quality of life for carers of people with Huntington’s disease?

Maria Dale, Fiona Eccles, Jane Simpson, H. Laurence Ross
Aging, Elder Care, and Social Issues
article

H049 Does social support predict quality of life for carers of people with Huntington’s disease?

Maria Dale, Fiona Eccles, Jane Simpson, H. Laurence Ross
article en

Abstract

<h3>Background</h3> Previous research has investigated predictors of quality of life (QoL) for carers of people with Huntington’s disease (HD) such as demographics, caring characteristics and illness-related variables of the person with HD. However, the investigation of psychosocial variables has been limited. Here we use data from Enroll-HD to investigate the importance of social support for carer QoL. <h3>Aims</h3> 1) To investigate whether social support predicts QoL for HD carers when controlling for demographics and HD illness-related variables. 2) To investigate whether social support buffers (i.e. moderates) the relationship between illness-related variables and QoL. <h3>Methods</h3> Participants were 880 carers of people with manifest HD enrolled in Enroll-HD. Multiple regressions were conducted to predict two subscales of the HD QoL for carers questionnaire (positive and negative feelings). Predictors were carer demographics, HD illness-related variables (behavioural/psychological, cognitive and motor difficulties and functional ability), and social support (satisfaction with family relationships and friendships). Moderation analyses tested whether the social support variables moderated the relationship between illness-related variables and positive and negative feelings. <h3>Results</h3> The two regression models were significant predicting 18% and 30% of the variance (for negative and positive feelings respectively). Both social support variables were significant independent predictors of the QoL in both models. Social support accounted for 9% and 21% of the variance (for negative and positive feelings respectively). All moderation models were non-significant. <h3>Conclusions</h3> Contextual factors such as social support are important for QoL for HD carers, although social support may not buffer the negative effects of symptoms of HD.

Leicestershire Partnership NHS Trust (GB), Lancaster University (GB)
Openalex Percentile: Top 74%
Aging, Elder Care, and Social Issues
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.

H049 Does social support predict quality of life for carers of people with Huntington’s disease? — Maria Dale, Fiona Eccles, et al. · (2024) | TGRS Research Map | TGRS