H049 Does social support predict quality of life for carers of people with Huntington’s disease?
<h3>Background</h3> Previous research has investigated predictors of quality of life (QoL) for carers of people with Huntington’s disease (HD) such as demographics, caring characteristics and illness-related variables of the person with HD. However, the investigation of psychosocial variables has been limited. Here we use data from Enroll-HD to investigate the importance of social support for carer QoL. <h3>Aims</h3> 1) To investigate whether social support predicts QoL for HD carers when controlling for demographics and HD illness-related variables. 2) To investigate whether social support buffers (i.e. moderates) the relationship between illness-related variables and QoL. <h3>Methods</h3> Participants were 880 carers of people with manifest HD enrolled in Enroll-HD. Multiple regressions were conducted to predict two subscales of the HD QoL for carers questionnaire (positive and negative feelings). Predictors were carer demographics, HD illness-related variables (behavioural/psychological, cognitive and motor difficulties and functional ability), and social support (satisfaction with family relationships and friendships). Moderation analyses tested whether the social support variables moderated the relationship between illness-related variables and positive and negative feelings. <h3>Results</h3> The two regression models were significant predicting 18% and 30% of the variance (for negative and positive feelings respectively). Both social support variables were significant independent predictors of the QoL in both models. Social support accounted for 9% and 21% of the variance (for negative and positive feelings respectively). All moderation models were non-significant. <h3>Conclusions</h3> Contextual factors such as social support are important for QoL for HD carers, although social support may not buffer the negative effects of symptoms of HD.
Authors
- Maria Dale (ORCID: https://orcid.org/0000-0001-6769-771X)
- Fiona Eccles (ORCID: https://orcid.org/0000-0003-1484-2703)
- Jane Simpson (ORCID: https://orcid.org/0000-0001-5071-4077)
- H. Laurence Ross
Institutions
- Leicestershire Partnership NHS Trust (GB)
- Lancaster University (GB)
Publication Details
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1136/jnnp-2024-ehdn.279
- Primary Topic
- Aging, Elder Care, and Social Issues
- Type
- article
- Field-Weighted Citation Impact
- 0.00