K003 The EHDN & MDS Huntington’s Disease fellowship exchange programme: evaluation of impact

<h3>Background</h3> The clinical fellowship programme in Huntington’s disease (HD) was initiated by the EHDN in 2013 and, from 2017, co-sponsored by the European section of the International Parkinson and Movement Disorder Society. The key aims of this unique programme are to (1) strengthen clinical care, (2) motivate and facilitate the training of young professionals, and (3) help establish contacts and opportunities for future collaboration. <h3>Aims</h3> The Fellowship Impact Project (FIP) was developed in 2023 to evaluate the impact of the programme in meeting its objectives, identify potential gaps/issues in its provision, and make data-driven recommendations for improvement. <h3>Methods</h3> Data were collected from three groups (past fellows, hosts, and the EHDN organisational support team) through surveys, one-to-one interviews, phone, email, and direct discussions. Data were analysed using descriptive statistics and qualitative analysis. <h3>Results</h3> A large proportion of past fellows were highly satisfied with what they had learnt from the programme, the opportunities provided for collaboration, and the impact of the programme on improving their HD practice and care in their home country. Hosts appreciated the motivation and enthusiasm of fellows. The EHDN organisational support team provided new insights into the successes and challenges of programme organisation, placement of the fellows, and administration. Several recommendations were made for improvement of the programme. <h3>Conclusion</h3> The FIP confirmed the success of the fellowship programme in providing opportunities for fellows to learn about multidisciplinary HD clinics and improve their clinical knowledge and care. The recommendations received are under evaluation.

Authors

Institutions

Publication Details

Published
2024-09-01
DOI
https://doi.org/10.1136/jnnp-2024-ehdn.352
Primary Topic
Genetic Neurodegenerative Diseases
Type
article
Field-Weighted Citation Impact
0.00
Controls
|||
ALL TIME
JAN
FEB
MAR
APR
MAY
JUN
JUL
AUG
SEP
OCT
article

K003 The EHDN & MDS Huntington’s Disease fellowship exchange programme: evaluation of impact

Catherine Deeprose, Asunción Martínez-Martínez, Juliana Bronzova, Fionnuala Margreiter
Genetic Neurodegenerative Diseases
article

K003 The EHDN & MDS Huntington’s Disease fellowship exchange programme: evaluation of impact

Catherine Deeprose, Asunción Martínez-Martínez, Juliana Bronzova, Fionnuala Margreiter
article en

Abstract

<h3>Background</h3> The clinical fellowship programme in Huntington’s disease (HD) was initiated by the EHDN in 2013 and, from 2017, co-sponsored by the European section of the International Parkinson and Movement Disorder Society. The key aims of this unique programme are to (1) strengthen clinical care, (2) motivate and facilitate the training of young professionals, and (3) help establish contacts and opportunities for future collaboration. <h3>Aims</h3> The Fellowship Impact Project (FIP) was developed in 2023 to evaluate the impact of the programme in meeting its objectives, identify potential gaps/issues in its provision, and make data-driven recommendations for improvement. <h3>Methods</h3> Data were collected from three groups (past fellows, hosts, and the EHDN organisational support team) through surveys, one-to-one interviews, phone, email, and direct discussions. Data were analysed using descriptive statistics and qualitative analysis. <h3>Results</h3> A large proportion of past fellows were highly satisfied with what they had learnt from the programme, the opportunities provided for collaboration, and the impact of the programme on improving their HD practice and care in their home country. Hosts appreciated the motivation and enthusiasm of fellows. The EHDN organisational support team provided new insights into the successes and challenges of programme organisation, placement of the fellows, and administration. Several recommendations were made for improvement of the programme. <h3>Conclusion</h3> The FIP confirmed the success of the fellowship programme in providing opportunities for fellows to learn about multidisciplinary HD clinics and improve their clinical knowledge and care. The recommendations received are under evaluation.

European Huntington's Disease Network
Openalex Percentile: Top 85%
Genetic Neurodegenerative Diseases
AI Navigator

Ask Laika to Summarize, Analyze, and Connect papers live on the map.

Summarize Papers & Methodologies

Extract key findings, datasets, and comparative methods across publications.

Benchmark Rankings & Visual Analytics

Rank top research institutions, authors, funders, topics, and journals by Field-Weighted Citation Impact (FWCI) and paper volume with instant charts.

Connect Distant Disciplines

Bridge topological clusters on the map to find hidden collaborative intersections.