User experience with HIV molecular epidemiology in research, surveillance, and cluster detection and response: a needs assessment
The imperatives identified by users underscore the necessity of HIV ME, while the challenges highlight the hurdles to be overcome, including ethical concerns which emerged as a shared emphasis across user groups. The strategies outlined offer a roadmap for overcoming these challenges. These insights, drawn from user experience, present a valuable opportunity to inform the development of guidelines for the ethical application of HIV ME in research, surveillance, and cluster detection and response.
Authors
- Travis Sanchez (ORCID: https://orcid.org/0000-0003-1133-4762)
- Anne L. R. Schuster (ORCID: https://orcid.org/0000-0003-4391-1712)
- Ashley Folta
- Gail Geller (ORCID: https://orcid.org/0000-0003-4856-1942)
- Susan J. Little (ORCID: https://orcid.org/0000-0002-7645-9737)
- Juli Murphy Bollinger (ORCID: https://orcid.org/0000-0001-6850-8562)
- Jeremy Sugarman (ORCID: https://orcid.org/0000-0001-7022-8332)
- John F. P. Bridges (ORCID: https://orcid.org/0000-0002-3082-5535)
- Sanjay R. Mehta (ORCID: https://orcid.org/0000-0002-2028-8158)
Institutions
- Johns Hopkins University (US)
- Emory University (US)
- University of San Diego (US)
- Johns Hopkins Medicine (US)
- University of California System (US)
- University of California San Diego (US)
- Johns Hopkins Berman Institute of Bioethics (US)
- The Ohio State University (US)
Publication Details
- Journal
- Current Medical Research and Opinion
- Published
- 2024-09-09
- DOI
- https://doi.org/10.1080/03007995.2024.2388840
- Citations
- 6
- Primary Topic
- Data-Driven Disease Surveillance
- Type
- article
- Field-Weighted Citation Impact
- 2.32
Funders
- Burroughs Wellcome Fund
- Gilead Sciences
- Merck KGaA
- ViiV Healthcare
- National Institutes of Health