Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking
The results presented here support inclusion of funding, utilization, and sustainability as topics of ethical concern in the practice of biobanking and networked biobanking. These issues are rooted in the stewardship obligations that biobankers feel to their partners, client investigators, and participants. The goal of promoting stewardship through networking requires significant time and effort to build governance models that honor the obligations of each individual biobank to their donors and advance the collective goals of the network. We conclude with suggestions offered by respondents to address improving these aspects of stewardship.
Authors
- R. Jean Cadigan (ORCID: https://orcid.org/0000-0002-6793-2174)
- Roselle Ponsaran (ORCID: https://orcid.org/0000-0003-4035-7648)
- Aaron J. Goldenberg (ORCID: https://orcid.org/0000-0002-0314-0303)
- Carla A. Rich
- Kyle B. Brothers (ORCID: https://orcid.org/0000-0002-8550-9724)
- Josie Timmons
Institutions
- University of North Carolina at Chapel Hill (US)
- University of Louisville (US)
- Kosair Children's Hospital (US)
- University School (US)
- Case Western Reserve University (US)
Publication Details
- Journal
- AJOB Empirical Bioethics
- Published
- 2024-09-09
- DOI
- https://doi.org/10.1080/23294515.2024.2399533
- Citations
- 2
- Primary Topic
- Ethics in Clinical Research
- Type
- article
- Field-Weighted Citation Impact
- 1.09
Funders
- National Human Genome Research Institute