Comparison of specialist ataxia centres with non-specialist services in terms of treatment, care, health services resource utilisation and costs in the UK using patient-reported data
This study provides useful information about ataxia patient care pathways in the UK. Overall, the results showed significantly higher patient satisfaction in SAC compared with non-SAC, at similar costs. The findings can be used to inform policy recommendations on how to improve treatment and care for people with these very rare and complex neurological diseases. Improving access to SAC for patients across the UK is one key policy recommendation of this study.
Authors
- Julie Vallortigara (ORCID: https://orcid.org/0000-0002-2092-5073)
- Stephen Morris (ORCID: https://orcid.org/0000-0002-5828-3563)
- Paola Giunti (ORCID: https://orcid.org/0000-0003-3508-4788)
- Julie Greenfield (ORCID: https://orcid.org/0000-0003-2876-4849)
- Suzanne M. Booth
- Barry Hunt
- Deborah Hoffman
Institutions
- University of Cambridge (GB)
- Ataxia UK (GB)
- UK Dementia Research Institute (GB)
- Takeda (United States) (US)
- University College London (GB)
Publication Details
- Journal
- BMJ Open
- Published
- 2024-09-01
- DOI
- https://doi.org/10.1136/bmjopen-2024-084865
- Citations
- 2
- Primary Topic
- Genetic Neurodegenerative Diseases
- Type
- article
- Field-Weighted Citation Impact
- 0.54
Funders
- Takeda Pharmaceutical Company
- Ataxia UK
- European Brain Council
- Medical Research Council