Development of the coreHEM mental health patient‐reported outcome measure – A novel mental health outlook measure for people with haemophilia
The instrument is content-validated and can be used as an exploratory outcome. MHO scores can be measured and compared to give more insight into patient quality of life.
Authors
- Donna A. Messner (ORCID: https://orcid.org/0000-0001-9123-1450)
- Michelle Witkop (ORCID: https://orcid.org/0000-0003-0758-286X)
- Elizabeth Clearfield (ORCID: https://orcid.org/0000-0003-1789-6635)
- Donna Coffin (ORCID: https://orcid.org/0000-0001-8372-4474)
- Ellen M. Janssen (ORCID: https://orcid.org/0000-0003-0405-4252)
- Paul E. Monahan (ORCID: https://orcid.org/0000-0003-2110-0740)
- Leonard A. Valentino (ORCID: https://orcid.org/0000-0002-7927-6418)
- Mark W. Skinner (ORCID: https://orcid.org/0000-0002-0934-0680)
- Tabassum Majid (ORCID: https://orcid.org/0000-0003-2383-4027)
- Mohit M. Jain (ORCID: https://orcid.org/0009-0003-8718-4374)
- Hsing‐Yuan Chang
Institutions
- University of Maryland, Baltimore (US)
- Canadian Hemophilia Society (CA)
- Chang Gung Memorial Hospital (TW)
- Center for Medical Technology Policy (US)
- BioMarin (United Kingdom) (GB)
- CSL (United States) (US)
- Impact (CA)
- Rush University (US)
- McMaster University (CA)
Publication Details
- Journal
- Haemophilia
- Published
- 2024-09-05
- DOI
- https://doi.org/10.1111/hae.15085
- Citations
- 1
- Primary Topic
- Hemophilia Treatment and Research
- Type
- article
- Field-Weighted Citation Impact
- 0.45
Funders
- Canadian Hemophilia Society
- Haemophilia Foundation Australia
- Stichting Haemophilia