Developing the MyCancerGene Digital Health Portal to Improve Patients’ Understanding of Germline Cancer Genetic Test Results: Development, User, and Usability Testing Study
MyCancerGene, a patient-centered digital GHP, was developed with extensive patient and genetic provider feedback and designed to enhance longitudinal patient understanding of and affective and behavioral responses to genetic testing, particularly in the era of evolving evidence and risk information.
Authors
- Brian Lee Egleston (ORCID: https://orcid.org/0000-0002-1633-799X)
- Kelsey Karpink
- Briana McLeod (ORCID: https://orcid.org/0000-0001-9103-9397)
- Jessica Ebrahimzadeh (ORCID: https://orcid.org/0000-0002-1505-9625)
- Cara Cacioppo (ORCID: https://orcid.org/0000-0003-4761-7027)
- Angela R. Bradbury (ORCID: https://orcid.org/0000-0001-9607-6402)
- Linda Fleisher (ORCID: https://orcid.org/0000-0002-6911-0756)
- Susan M. Domchek (ORCID: https://orcid.org/0000-0002-5914-7272)
- Kuang‐Yi Wen (ORCID: https://orcid.org/0000-0002-4133-1178)
- Dana Falcone (ORCID: https://orcid.org/0009-0001-0112-2603)
- Lynne I. Wagner (ORCID: https://orcid.org/0000-0001-9685-4796)
- Dominique Fetzer (ORCID: https://orcid.org/0000-0001-6374-0151)
- Enida Selmani
- Kathryn Schweickert
- Lauren Gutstein
- Shelby Posen
- Elisabeth McCarty Wood (ORCID: https://orcid.org/0000-0002-4734-2214)
- Claire Langer
- Phillip Trieu
Institutions
- University of North Carolina at Chapel Hill (US)
- Fox Chase Cancer Center (US)
- Thomas Jefferson University (US)
- Temple University Health System (US)
- Department of Health (ZA)
- University of Pennsylvania (US)
Publication Details
- Journal
- JMIR Formative Research
- Published
- 2024-09-06
- DOI
- https://doi.org/10.2196/56282
- Citations
- 1
- Primary Topic
- BRCA gene mutations in cancer
- Type
- article
- Field-Weighted Citation Impact
- 0.55