Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer
Pediatric cancer shareholders advocated for diverse, and sometimes conflicting, approaches for prognostic disclosure. Although nearly all participants endorsed the importance of individualized prognostic disclosure, specific strategies to encourage or facilitate person-centered prognostic conversation are lacking. Future research will focus on collaboration with pediatric patients, parents, and oncologists to codesign a clinical intervention to improve prognostic communication for children with advanced cancer and their families.
Authors
- Justin Nathaniel Baker (ORCID: https://orcid.org/0000-0002-6584-6483)
- Erica C. Kaye (ORCID: https://orcid.org/0000-0002-6522-3876)
- Pamela S. Hinds (ORCID: https://orcid.org/0000-0001-6491-6649)
- Shoshana Mehler
- Nidhi Mali (ORCID: https://orcid.org/0000-0001-5280-9993)
- Jennifer W. Mack (ORCID: https://orcid.org/0000-0001-5791-4178)
- Kelly Bien
- Tara M. Brinkman (ORCID: https://orcid.org/0000-0002-4250-6160)
- Harmony Farner
Institutions
- St. Jude Children's Research Hospital (US)
- Children's National (US)
- George Washington University (US)
- Dana-Farber Cancer Institute (US)
- Stanford University (US)
Publication Details
- Journal
- JCO Oncology Practice
- Published
- 2024-09-06
- DOI
- https://doi.org/10.1200/op.24.00249
- Citations
- 14
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 15.53