LGBTQ+ inequity in crowdfunding cancer costs: The influence of online reach and LGBTQ+ state policy
BACKGROUND: Emerging literature suggests that LGBTQ+ cancer survivors are more likely to experience financial burden than non-LGBTQ+ survivors. However, LGBTQ+ cancer survivors experience with cost-coping behaviors such as crowdfunding is understudied. METHODS: We aimed to assess LGBTQ+ inequity in cancer crowdfunding by combining community-engaged and technology-based methods. Crowdfunding campaigns were web-scraped from GoFundMe and classified as cancer-related and LGBTQ+ or non-LGBTQ+ using term dictionaries. Bivariate analyses and generalized linear models were used to assess differential effects in total goal amount raised by LGBTQ+ status. Stratified models were run by online reach and LGBTQ+ inclusivity of state policy. RESULTS: A total of N = 188,342 active cancer-related crowdfunding campaigns were web-scraped from GoFundMe in November 2022, of which N = 535 were LGBTQ+ and ranged from 2014 to 2022. In multivariable models of recent campaigns (2019-2022), LGBTQ+ campaigns raised $1608 (95% CI: -2139, -1077) less than non-LGBTQ+ campaigns. LGBTQ+ campaigns with low (26-45 donors), moderate (46-87 donors), and high (88-240 donors) online reach raised on average $1152 (95% CI: -$1589, -$716), $1050 (95% CI: -$1737, -$364), and $2655 (95% CI: -$4312, -$998) less than non-LGBTQ+ campaigns respectively. When stratified by LGBTQ+ inclusivity of state level policy states with anti-LGBTQ+ policy/lacking equitable policy raised on average $1910 (95% CI: -2640, -1182) less than non-LGBTQ+ campaigns from the same states. CONCLUSIONS AND RELEVANCE: Our findings revealed LGBTQ+ inequity in cancer-related crowdfunding, suggesting that LGBTQ+ cancer survivors may be less able to address financial burden via crowdfunding in comparison to non-LGBTQ+ cancer survivors-potentially widening existing economic inequities.
Authors
- Erin E. Kent (ORCID: https://orcid.org/0000-0003-2503-2191)
- Caleb Easterly (ORCID: https://orcid.org/0000-0001-7853-377X)
- Echo L. Warner (ORCID: https://orcid.org/0000-0002-5998-9744)
- Stephen A. Rains (ORCID: https://orcid.org/0000-0002-1639-8557)
- Matt Poquadeck
- Austin R. Waters (ORCID: https://orcid.org/0000-0002-9947-8535)
- Megan Mulvaney (ORCID: https://orcid.org/0000-0002-3527-2597)
- Anne C. Kirchhoff (ORCID: https://orcid.org/0000-0002-0747-9179)
- Kristin G. Cloyes (ORCID: https://orcid.org/0000-0003-2139-7716)
- Lauren V. Ghazal (ORCID: https://orcid.org/0000-0001-5768-5571)
- Ida Tovar (ORCID: https://orcid.org/0009-0007-1304-9654)
- Cindy Turner (ORCID: https://orcid.org/0000-0001-5250-3409)
Institutions
- University of North Carolina at Chapel Hill (US)
Publication Details
- Journal
- UNC Libraries
- Published
- 2024-09-04
- DOI
- https://doi.org/10.17615/7jj4-er82
- Primary Topic
- FinTech, Crowdfunding, Digital Finance
- Type
- article
- Field-Weighted Citation Impact
- 0.00