The German Central Health Study Hub – A Service to Find and Publish Clinical, Public Health and Epidemiolocal Studies and Associated Documents
The service fills a marked gap and connects both user groups, yet it still needs to be improved in various dimensions (features, content, usage). The impact on the community needs to be further assessed. Despite recent legislative changes (GDNG, EHDS), the system improves the findability of sensitive data, provides a blueprint for similar systems and shows how to create a useful and user-friendly service together with users.
Authors
- Vera Clemens (ORCID: https://orcid.org/0000-0002-9917-4443)
- Juliane Fluck (ORCID: https://orcid.org/0000-0003-1379-7023)
- Johannes Darms (ORCID: https://orcid.org/0000-0001-5809-2276)
- Claudia Brünings-Kuppe (ORCID: https://orcid.org/0009-0008-8835-6664)
- Marisabel Gonzalez-Ocanto
- Selim Cici
Institutions
- University of Bonn (DE)
- ZB MED - Information Centre for Life Sciences (DE)
- Leibniz Institute for Prevention Research and Epidemiology - BIPS (DE)
Publication Details
- Journal
- Studies in health technology and informatics
- Published
- 2024-08-30
- DOI
- https://doi.org/10.3233/shti240847
- Citations
- 3
- Primary Topic
- Research Data Management Practices
- Type
- article
- Field-Weighted Citation Impact
- 3.30