Health-related quality of life and caregiver burden of pediatric patients with inborn errors of metabolism in Japan using EQ-5D-Y, PedsQL, and J-ZBI
The HRQoL of patients with IEM without developmental disabilities in our study was similar to that of the general Japanese population. The HRQoL of patients with IEM with developmental disabilities was low and associated with a tendency towards an increased burden of care.
Authors
- Go Tajima (ORCID: https://orcid.org/0000-0002-2398-0748)
- Akari Nakamura‐Utsunomiya (ORCID: https://orcid.org/0000-0002-7417-8923)
- Takeru Shiroiwa (ORCID: https://orcid.org/0000-0003-3055-9932)
- Kimitoshi Nakamura (ORCID: https://orcid.org/0000-0001-6659-4145)
- Chikahiko Numakura
- Nobuyuki Shimozawa (ORCID: https://orcid.org/0000-0003-3040-5458)
- Keiko Konomura (ORCID: https://orcid.org/0000-0002-9457-5969)
- Hironori Kobayashi (ORCID: https://orcid.org/0000-0001-9091-3521)
- Ryosuke Bo (ORCID: https://orcid.org/0000-0002-8931-7842)
- Eri Hoshino (ORCID: https://orcid.org/0000-0003-2308-2048)
- Takashi Fukuda (ORCID: https://orcid.org/0000-0002-4601-0955)
- Yosuke Shigematsu
Institutions
- University of Fukui (JP)
- Yamagata University (JP)
- Hiroshima University (JP)
- National Institute of Public Health (JP)
- Gifu University Hospital (JP)
- Saitama Medical University Hospital (JP)
- National Center For Child Health and Development (JP)
- Shimane University Hospital (JP)
- Gifu University (JP)
- Kobe University (JP)
- Saitama Medical University (JP)
- Kumamoto University (JP)
Publication Details
- Journal
- Quality of Life Research
- Published
- 2024-09-04
- DOI
- https://doi.org/10.1007/s11136-024-03775-0
- Citations
- 2
- Primary Topic
- Childhood Cancer Survivors' Quality of Life
- Type
- article
- Field-Weighted Citation Impact
- 2.22
Funders
- Public Health Institute
- Ministry of Health, Labour and Welfare
- Shimane University